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ez · @ezchili

486 followers · 179 posts · Server mstdn.social

You can't talk about Post-Exertional Malaise (PEM) without mentioning ME/CFS. The term PEM was created to describe the unique manifestation occurring in people with ME/CFS.

If you separate PEM from its history and origin, you perpetuate the stigma surrounding ME/CFS. We need visibility and spread of knowledge.

#MECFS #Stigma #pwME #MedMastodon #MedEd #HistMed #HistoryOfMedicine #Medicine #PEM #PostExertionalMalaise @mecfs @historyofmedicine

#postexertionalmalaise #pem #medicine #historyofmedicine #histmed #meded #MedMastodon #pwme #stigma #mecfs

Last updated 1 year ago

Original post

ez · @ezchili

486 followers · 179 posts · Server mstdn.social

You can't talk about Post-Exertional Malaise (PEM) without mentioning ME/CFS. The term PEM was created to describe the unique manifestation occurring in people with ME/CFS.

If you separate PEM from its history and origin, you perpetuate the stigma surrounding ME/CFS. We need visibility and spread of knowledge.

#MECFS #Stigma #pwME #MedMastodon #MedEd #HistoryOfMedicine #PEM #PostExertionalMalaise @mecfs @historyofmedicine

#postexertionalmalaise #pem #historyofmedicine #meded #MedMastodon #pwme #stigma #mecfs

Last updated 1 year ago

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Tom Kindlon · @tomkindlon

762 followers · 1967 posts · Server disabled.social

YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals

Post-Exertional Malaise in ME/
#CFS - Management and Supports - Webinar for Health Professionals

"Dr Cathy Stephenson (General Practitioner) shares for colleagues what she has learnt about the symptom #postexertionalmalaise while supporting people impacted by #MECFS (#MyalgicEncephalomyelitis / #ChronicFatigueSyndrome)"

https://www.youtube.com/watch?v=N2RCAthr3TA

I haven't watched this so far but I have seen a lot of sensible people praise it

@mecfs @longcovid
#LongCovid #PwLC #postcovid #PwME #MyalgicE

#cfs #postexertionalmalaise #mecfs #MyalgicEncephalomyelitis #chronicfatiguesyndrome #LongCovid #pwlc #PostCovid #pwme #myalgice

Last updated 1 year ago

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Hannu Ikonen, MD · @hannu_ikonen

4911 followers · 2272 posts · Server med-mastodon.com

Open media

More people would do more for their mental health, the climate, and physical health jf they just heeded this solid advice...

...But for Capitalism.

#postexertionalmalaise #Capitalism #MentalHealth #anticapitalism #latestagecapitalism #WealthTransferUpward

#postexertionalmalaise #capitalism #mentalhealth #anticapitalism #latestagecapitalism #wealthtransferupward

Last updated 1 year ago

Original post

Tom Kindlon · @tomkindlon

740 followers · 1863 posts · Server disabled.social

Open media

"High proportions of post-exertional malaise and orthostatic intolerance in people living with #postCOVID19 condition: the PRIME post-COVID study"

Free fulltext:
https://www.medrxiv.org/content/10.1101/2023.08.17.23294204v1

"Exercise-based treatments can be harmful in people who were SARS-CoV-2 positive and
living with post-COVID-19 condition (PL-PCC) and who have #PostExertionalMalaise
(#PEM) or #orthostaticintolerance intolerance (#OI)"

#LongCovid #PwLC @longcovid @covid @covid19 #PostCovidSyndrome #postcovid #COVID19 #COVID

#PostCovid19 #postexertionalmalaise #PEM #orthostaticintolerance #oi #LongCovid #pwlc #postcovidsyndrome #PostCovid #COVID19 #covid

Last updated 1 year ago

Original post

Tom Kindlon · @tomkindlon

735 followers · 1848 posts · Server disabled.social

CPET - Cardiopulmonary Exercise Test - I Have ME/CFS or Long COVID; Where do I go from here? - CPET - Cardiopulmonary Exercise Test

“I Have ME/CFS or Long COVID; Where do I go from here?” Recent post from the Workwell Foundation

An informative introduction to ME and #longCOVID with emphasis on #PEM / #PESE, the importance of pacing and of avoiding graded exercise therapy.

https://workwellfoundation.org/i-have-me-cfs-or-long-covid-where-do-i-go-from-here/

#PwLC @longcovid @mecfs #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #PostCovid #PostExertionalMalaise

#LongCovid #PEM #pese #pwlc #mecfs #cfs #myalgice #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwme #PostCovid #postexertionalmalaise

Last updated 1 year ago

Original post

Tom Kindlon · @tomkindlon

660 followers · 1493 posts · Server disabled.social

YouTube - Why PEM Matters

Bateman Horne Center

The 2nd video in the education series for #rehab professionals, explains the red flags of #PEM & how physical & occupational therapists must modify their treatment plan for individuals with #PostExertionalMalaise (PEM).

Amy Mooney, MS OT/R says, “For people with PEM we actually need to teach them how to rest & recover [back to baseline] so they can build up their battery through strategies for pacing”

https://www.youtube.com/watch?v=u4qZVF9lxfM

#OTalk #PT #MEcfs @mecfs #LongCovid @longcovid

#rehab #PEM #postexertionalmalaise #otalk #pt #mecfs #LongCovid

Last updated 1 year ago

Original post

Tom Kindlon · @tomkindlon

660 followers · 1490 posts · Server disabled.social

The first video in the education series for rehab professionals from the Bateman Horne Center introduces terms, explains the important role of physical and occupational therapists for individuals with ME/CFS and #LongCovid and calls attention to how the medical system has underserved this population.

https://youtu.be/PvBEdX759yE

@longcovid #mecfs @mecfs #cfs #PostExertional #postexertionalmalaise #pem #pese #pene #MyalgicEncephalomyelitis #PostCovid #PostCovid19 #pwlc #pwme

#LongCovid #mecfs #cfs #postexertional #postexertionalmalaise #PEM #pese #pene #MyalgicEncephalomyelitis #PostCovid #PostCovid19 #pwlc #pwme

Last updated 1 year ago

Original post

Kit Muse · @KitMuse

231 followers · 298 posts · Server eponaauthor.social

Open media

Distinguishing the Different Layers of Pain with Fibromyalgia
Ask any fibromyalgia patient about the daily thrum of pain that fills our bodies. For most, it can be a low hum, background noise, white noise, but then something happens, or the weather shifts, and the pain moves as well. It starts t
https://fibromyalgia.chickenyogi.com/distinguishing-the-different-layers-of-pain-with-fibromyalgia/
#ChronicPain #arthritis #ChronicPain #MuscularPain #PEM #PostexertionalMalaise #PostworkoutPain

#chronicpain #arthritis #muscularpain #PEM #postexertionalmalaise #postworkoutpain

Last updated 1 year ago

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Retweets of Preeya · @preeyaretweets

10 followers · 17776 posts · Server bigleaf.city

RT @NeuroWeaverGSU
🧵 People w/ #MECFS &/or #LongCovid need #PostExertionalMalaise - informed wrap-around care. Anything less, & remarkably we are better off outside clinical settings & fending 4 ourselves at home. Here’s what that could look like f/ clinical policy to patient rooms👇
@CDCgov
1/6

#mecfs #LongCovid #postexertionalmalaise

Last updated 1 year ago

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Jane Eyrie · @jane_eyrie

63 followers · 135 posts · Server mastodon.scot

Long COVID exercise trials proposed by NIH raise alarm

Long COVID exercise trials proposed by NIH raise alarm: a large proportion of people with #LongCovid have reported experiencing post-exertional malaise (PEM) — a worsening of symptoms such as fatigue, difficulty regulating body temperature and cognitive dysfunction, after even light exercise — and worry that putting certain RECOVER participants through exercise trials could cause them harm. #MECFS #pwME #PostExertionalMalaise

https://www.nature.com/articles/d41586-023-00900-w

#postexertionalmalaise #pwme #mecfs #LongCovid

Last updated 1 year ago

Original post

Tom Kindlon · @tomkindlon

543 followers · 783 posts · Server disabled.social

8/

““Like, what the hell, body? Seriously? This is what you’re going to get mad about? All I did was blow some notes.” She tries not to be too hard on her body, though. “It’s not deliberately being an asshole to make your life miserable,” she says. “It fights to survive. If you feel like shit right now, it’s because it’s trying.”

@cfs #postexertionalmalaise #pese #PEM #pene #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #PwMEs #cfsme #CFIDS #SEID

#postexertionalmalaise #pese #PEM #pene #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #pwmes #cfsme #cfids #seid

Last updated 1 year ago

Original post

Tom Kindlon · @tomkindlon

532 followers · 694 posts · Server disabled.social

Open media

Given all talk re:#PostExertionalMalaise/#PostExertionalSymptomExacerbation in #LongCovid

Here again is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis (ME) & #ChronicFatigueSyndrome (#CFS)"

Also shows all the range of #MEcfs symptoms

From:
"Assessment of Post-Exertional Malaise (PEM) in Patients with #ME and #CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team
https://ncbi.nlm.nih.gov/pmc/articles/PMC6468435/pdf/diagnostics-09-00026.pdf

#PEM #PESE #CFSME #PwME #MEeps @mecfs@a.gup.p @longcovid

#postexertionalmalaise #LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #cfs #mecfs #me #PEM #pese #cfsme #pwme #meeps