Colin-Roy Hunter · @criquaer
417 followers · 3299 posts · Server mstdn.social
Just finished sorting through the last of the stuff removed from my bed-cell one year ago in order to deep-cleanse my room.
And thus a reminder it’s time to re-do! 😂
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #ELCI #PostViralDisorder
#postviraldisorder #elci #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme
Colin-Roy Hunter · @criquaer
404 followers · 2920 posts · Server mstdn.social
My blog-post for this year’s M.E. events, on what the charities could do to help us.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth
Colin-Roy Hunter · @criquaer
403 followers · 2809 posts · Server mstdn.social
Whether my #Fibromyalgia &/or my #MyalgicEncephalomyelitis, my body is always in #pain (the visualisation below): differing degress; different places. Always in pain. And no, even with #painkillers, the pain never totally absents itself!
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #pwme #MEAwarenessMonth #internationalmeawarenessmonth #painkillers #pain #myalgicencephalomyelitis #fibromyalgia
Colin-Roy Hunter · @criquaer
404 followers · 2809 posts · Server mstdn.social
I am not very techie, so uncertain whether this is a ten-minute-or-so podcast or a radio-broadcast extract. It is all conducted in, for the most part, very clear Austrian-German. The subject matter is the background to the M.E. demonstration in central Vienna.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth
Colin-Roy Hunter · @criquaer
404 followers · 2812 posts · Server mstdn.social@cjfriess Signature 8276. If the petition reaches 10,000 #UKgov must respond.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth #ukgov
Colin-Roy Hunter · @criquaer
351 followers · 1153 posts · Server mstdn.socialPer #ONS:
“An estimated 1.9 million people living in private households in the UK (2.9% of the population) were experiencing self-reported #LongCovid (symptoms continuing for more than four weeks after the first confirmed or suspected #coronavirus (#COVID19) infection … as of 5 March 2023”
#postviraldisorder #COVID19 #Coronavirus #LongCovid #ons
Colin-Roy Hunter · @criquaer
351 followers · 1153 posts · Server mstdn.social
#BhupreshPristy (following earlier comments I previously tooted here) tweeted on 30.03.23:
“#MECFS #LongCovid You don’t have to wait long. We will present our work in Berlin & Hinxton meeting. As always, we believe in functional & meaningful, data driven biomedical research that can make sense for understanding complex molecular processes. Let’s dive deeper this time.”
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralDisorder
#postviraldisorder #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #LongCovid #mecfs #bhupreshpristy
Colin-Roy Hunter · @criquaer
351 followers · 1153 posts · Server mstdn.social
For German-speakers, yesterday evening #ORF (the #Austrian equivalent to the #BBC) in their news-programme #ZeitimBild, broadcast an item on #MyalgischeEnzephalomyelitis.
I have to say I cried a few tears. I cannot imagine the BBC’s main news even making such an item.
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
#postviraldisorder #LongCovid #mecfs #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MyalgischeEnzephalomyelitis #zeitimbild #BBC #austrian #orf
Colin-Roy Hunter · @criquaer
351 followers · 1153 posts · Server mstdn.social“Pandemic or no, [#Cochrane are] hoping no one is looking too closely at their promise.
…
There IS an answer out there. It WILL be found. I’m an optimist.”
Alicia Butcher Ehrhardt, #pwME, author
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
This in response to David Tuller’s blog of 21st March:
#postviraldisorder #LongCovid #mecfs #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #cochrane