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Tom Kindlon · @tomkindlon
773 followers · 2007 posts · Server disabled.social
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New pre-print from Taiwan:

How post-infection status could lead to the increasing risks of & the potential mechanisms: A 17-year population-based Cohort study

Free:
assets.researchsquare.com/file

"The findings of this study demonstrate the association between CFS and infection with common pathogens, including bacteria, virus and fungi"

@mecfs

#chronicfatiguesyndrome #MyalgicEncephalomyelitis #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
417 followers · 3299 posts · Server mstdn.social
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Just finished sorting through the last of the stuff removed from my bed-cell one year ago in order to deep-cleanse my room.

And thus a reminder it’s time to re-do! 😂

#postviraldisorder #elci #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
404 followers · 2920 posts · Server mstdn.social
Pink Triangles, Blue Triangles

#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
403 followers · 2809 posts · Server mstdn.social
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Whether my &/or my , my body is always in (the visualisation below): differing degress; different places. Always in pain. And no, even with , the pain never totally absents itself!

#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #pwme #MEAwarenessMonth #internationalmeawarenessmonth #painkillers #pain #myalgicencephalomyelitis #fibromyalgia

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
404 followers · 2809 posts · Server mstdn.social
Technikum ONE - Internationaler ME/CFS-Tag - Technikum ONE

I am not very techie, so uncertain whether this is a ten-minute-or-so podcast or a radio-broadcast extract. It is all conducted in, for the most part, very clear Austrian-German. The subject matter is the background to the M.E. demonstration in central Vienna.

technikumone.at/internationale

#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
404 followers · 2812 posts · Server mstdn.social

@greenway As we move into ‘s , note the new code is 8E49.0 and that aka aka is classified under diseases of the nervous system. 💙

#postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #8e49 #ICD11 #WHO

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
404 followers · 2812 posts · Server mstdn.social

#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth #ukgov

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
404 followers · 2816 posts · Server mstdn.social
Health Rising - Immune Disease? Neutrophils on the Attack in Fibromyalgia - Health Rising

It may be , but here is some good news about M.E.’s sister illness, .

“the immune system and the peripheral nervous system are involved” which could “lead to a whole new array of treatment choices for a disease that desperately needs them.”

healthrising.org/blog/2023/05/

#LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #fibromyalgia #MEAwarenessMonth #internationalmeawarenessmonth

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
381 followers · 2179 posts · Server mstdn.social

Perhaps I ought to have elucidated that this is not solely for , but also those with , , , etc. as well as healthy folk to act as . Please consider signing up. There is no guarantee one will be selected, but the act of volunteering lends support to this much-needed effort. 🙏🏻🌈💕

#controls #pvfs #postviralfatiguesyndrome #pwLC #LongCovid #pwfm #fibromyalgia #pwme

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
575 followers · 998 posts · Server disabled.social

May 5 press release:
"NIH study identifies features of neurological symptoms: Findings offer insight into biological mechanisms, pointing to possible treatments"

nih.gov/news-events/news-relea

This in-depth study was run by Avi Nath who also is leading the in-depth NIH ME/CFS study using a similar format

@longcovid

#LongCovid #LongHaulers #covidlonghaulers #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness

Last updated 1 year ago
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Colin-Roy Hunter · @criquaer
380 followers · 2153 posts · Server mstdn.social
Open Medicine Foundation - StudyME - Open Medicine Foundation

I have signed up to ‘s volunteer research-participant register, , whereby scientists can locate potential contributors. The sign-up takes approximately five minutes.

I have and the last page of text was the most difficult & time-consuming section for me to follow.




omf.ngo/studyme/

#postviralfatiguesyndrome #pvfs #fibromyalgia #pwfm #mecfs #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth #SevereME #studyme #openmedicinefoundation

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
567 followers · 932 posts · Server disabled.social
Open media

#LongCovid #pacing #energymanagement #spoonie #energyconservation #mecfs #cfs #pwme #meeps #postviralfatiguesyndrome #pvfs #PostViralIllness

Last updated 2 years ago
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Irish ME/CFS Association · @IrishMECFSAssociation
121 followers · 709 posts · Server mastodon.ie
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#meawarenesshour #cfs #myalgicencephalomyelitis #ChronicFatigueSyndrome #pwme #mye #meeps #movementforgood #postviralfatiguesyndrome #PostViralSyndrome #pvfs

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social
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New from Poland:

Study examining the prevalence of 8* out of the 9 symptoms of (Fukuda criteria) following .

CFS symptoms tended to be higher in women (similar to CFS itself which is more prevalent in women)

Free:
onlinelibrary.wiley.com/doi/10

*all but cognitive symptoms

@longcovid @mecfs

#cfs #COVID19 #LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #PostViralIllness #postviralfatiguesyndrome #postviralsyndrome #pvfs

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social

2/
""Isolation in comes in various forms and it's not primarily just that physical isolation," says Yochai Re'em, MD..."A different yet equally challenging type of isolation is the emotional isolation, where you need more emotional support, connection with other people who can appreciate what it is you are going through without putting their own needs and desires onto you — and that can be hard to find"

@longcovid

#LongCovid #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social
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🧵
From:
"COVID Isolated People. Makes It Worse"
May require free registration

Re'em is a psychiatrist

medscape.com/viewarticle/98598

I think similar things in the quote & elsewhere in article, would apply to / .

Good to see two psychiatrists in this article making perceptive ponts

@mecfs @longcovid

1/

#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #PostViralIllness #postviralfatiguesyndrome #cfs #mecfs

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social

2/

Often even within samples of long-term patients who see themselves as having ME/CFS, a percentage don't satisfy ME/CFS criteria for one reason or another at a particular point in time. We are seeing that with @DecodeMEstudy but also in previous Leonard Jason studies

@mecfs

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #covidlonghaulers #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #postviralfatiguesyndrome #postviralsyndrome #pvfs

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social
Open media

#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #covidlonghaulers #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
303 followers · 112 posts · Server disabled.social
Time - It Isn't Just Long COVID. Post-Viral Illnesses Are More Common Than You Think

🧵
Sympathetic TIME article focusing on & /#ChronicFatigueSyndrome with quotes from Lucinda Bateman, @virusesimmunity & Nancy Klimas

“It Isn't Just . Post-Viral Illnesses Are More Common Than You Think”

time.com/6240058/post-viral-il

@mecfs

1/

#PostCovid #MyalgicEncephalomyelitis #LongCovid #mecfs #pwme #cfsme #cfids #postviral #PostViralIllness #postviralsyndrome #postviralfatiguesyndrome

Last updated 2 years ago
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Tom Kindlon · @tomkindlon
253 followers · 48 posts · Server disabled.social

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #meeps #cfsme #NeuroME #spoonie #LongCovid #postviralfatiguesyndrome #pvfs #PostViralIllness

Last updated 2 years ago
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