New pre-print from Taiwan:
How post-infection status could lead to the increasing risks of #chronicfatiguesyndrome & the potential mechanisms: A 17-year population-based Cohort study
"The findings of this study demonstrate the association between CFS and infection with common pathogens, including bacteria, virus and fungi"
#MyalgicEncephalomyelitis #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness #MEcfs #CFS #PwME #MyalgicE
#chronicfatiguesyndrome #MyalgicEncephalomyelitis #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness #mecfs #cfs #pwme #myalgice
Just finished sorting through the last of the stuff removed from my bed-cell one year ago in order to deep-cleanse my room.
And thus a reminder it’s time to re-do! 😂
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #ELCI #PostViralDisorder
#postviraldisorder #elci #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme
My blog-post for this year’s M.E. events, on what the charities could do to help us.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
https://crippledqueeranglo-europeanranter.blogspot.com/2023/05/pink-triangles-blue-triangles.html
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth
Whether my #Fibromyalgia &/or my #MyalgicEncephalomyelitis, my body is always in #pain (the visualisation below): differing degress; different places. Always in pain. And no, even with #painkillers, the pain never totally absents itself!
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #pwme #MEAwarenessMonth #internationalmeawarenessmonth #painkillers #pain #myalgicencephalomyelitis #fibromyalgia
I am not very techie, so uncertain whether this is a ten-minute-or-so podcast or a radio-broadcast extract. It is all conducted in, for the most part, very clear Austrian-German. The subject matter is the background to the M.E. demonstration in central Vienna.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth
@greenway As we move into #WHO ‘s #ICD11, note the new code is 8E49.0 #8E49 and that #MyalgicEncephalomyelitis aka #ChronicFatigueSyndrome aka #PostViralFatigueSyndrome is classified under diseases of the nervous system. 💙
#postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #8e49 #ICD11 #WHO
@cjfriess Signature 8276. If the petition reaches 10,000 #UKgov must respond.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid #PostViralDisorder
#postviraldisorder #LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth #ukgov
It may be #InternationalMEAwarenessMonth #MEAwarenessMonth, but here is some good news about M.E.’s sister illness, #Fibromyalgia.
“the immune system and the peripheral nervous system are involved” which could “lead to a whole new array of treatment choices for a disease that desperately needs them.”
#pwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralFatigueSyndrome #MECFS #LongCovid
https://www.healthrising.org/blog/2023/05/10/immune-disease-neutrophils-fibromyalgia/
#LongCovid #mecfs #postviralfatiguesyndrome #ChronicFatigueSyndrome #myalgicencephalomyelitis #pwme #fibromyalgia #MEAwarenessMonth #internationalmeawarenessmonth
Perhaps I ought to have elucidated that this is not solely for #pwME, but also those with #Fibromyalgia #pwFM, #LongCovid #pwLC, #PostViralFatigueSyndrome #PVFS, etc. as well as healthy folk to act as #controls. Please consider signing up. There is no guarantee one will be selected, but the act of volunteering lends support to this much-needed effort. 🙏🏻🌈💕
#controls #pvfs #postviralfatiguesyndrome #pwLC #LongCovid #pwfm #fibromyalgia #pwme
May 5 press release:
"NIH study identifies features of #LongCOVID neurological symptoms: Findings offer insight into biological mechanisms, pointing to possible treatments"
This in-depth study was run by Avi Nath who also is leading the in-depth NIH ME/CFS study using a similar format
@longcovid #longhaulers #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness
#LongCovid #LongHaulers #covidlonghaulers #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness
I have signed up to #OpenMedicineFoundation‘s volunteer research-participant register, #StudyME , whereby scientists can locate potential contributors. The sign-up takes approximately five minutes.
I have #SevereME and the last page of text was the most difficult & time-consuming section for me to follow.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #MECFS
#pwFM #Fibromyalgia
#PVFS #PostViralFatigueSyndrome
#postviralfatiguesyndrome #pvfs #fibromyalgia #pwfm #mecfs #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth #SevereME #studyme #openmedicinefoundation
"Self-Tracking to Do Less: An Autoethnography of #LongCOVID That Informs the Design of #Pacing Technologies"
Free
https://dl.acm.org/doi/pdf/10.1145/3544548.3581505
#EnergyManagement #Spoonie #EnergyConservation #MEcfs #CFS #PwME #MEeps #PostViralFatigueSyndrome #PVFS #postviralillness @mecfs @longcovid
#LongCovid #pacing #energymanagement #spoonie #energyconservation #mecfs #cfs #pwme #meeps #postviralfatiguesyndrome #pvfs #PostViralIllness
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Longer message about this competition where 420 charities will win £1000 https://movementforgood.com/index.php?cn=20100254&ct=health&i=1680527423-83536.jpg&utm_source=holiday+card&utm_medium=social&utm_campaign=M4G2023card&utm_id=M4G2023card
#meawarenesshour #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #MyE #MEeps
@Ecclesiastical
#MovementForGood #PostViralFatigueSyndrome #PostViralSyndrome #PVFS
#meawarenesshour #cfs #myalgicencephalomyelitis #ChronicFatigueSyndrome #pwme #mye #meeps #movementforgood #postviralfatiguesyndrome #PostViralSyndrome #pvfs
New from Poland:
Study examining the prevalence of 8* out of the 9 symptoms of #CFS (Fukuda criteria) following #Covid19.
CFS symptoms tended to be higher in women (similar to CFS itself which is more prevalent in women)
Free:
https://onlinelibrary.wiley.com/doi/10.1002/brb3.2849
*all but cognitive symptoms
#LongCovid @longcovid @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #postviralillness #PostViralFatigueSyndrome #PostViralSyndrome #PVFS
#cfs #COVID19 #LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #PostViralIllness #postviralfatiguesyndrome #postviralsyndrome #pvfs
2/
""Isolation in #longCOVID comes in various forms and it's not primarily just that physical isolation," says Yochai Re'em, MD..."A different yet equally challenging type of isolation is the emotional isolation, where you need more emotional support, connection with other people who can appreciate what it is you are going through without putting their own needs and desires onto you — and that can be hard to find"
@longcovid #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness
#LongCovid #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness
🧵
From:
"COVID Isolated People. #LongCOVID Makes It Worse"
May require free registration
Re'em is a psychiatrist
https://www.medscape.com/viewarticle/985983
I think similar things in the quote & elsewhere in article, would apply to #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome.
Good to see two psychiatrists in this article making perceptive ponts
#postviralillness #PostViralFatigueSyndrome #CFS @mecfs @longcovid #MEcfs
1/
#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #PostViralIllness #postviralfatiguesyndrome #cfs #mecfs
2/
Often even within samples of long-term patients who see themselves as having ME/CFS, a percentage don't satisfy ME/CFS criteria for one reason or another at a particular point in time. We are seeing that with @DecodeMEstudy but also in previous Leonard Jason studies
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME @mecfs #longhaulers #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #PostViralFatigueSyndrome #PostViralSyndrome #PVFS
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #covidlonghaulers #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #postviralfatiguesyndrome #postviralsyndrome #pvfs
New:
"ME/CFS and Post-Exertional Malaise among Patients with Long COVID"
Free full text:
https://www.mdpi.com/2035-8377/15/1/1
"Among the 465 participants [with #LongCovid], 58% met a ME/CFS case definition"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME @mecfs #longhaulers #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness
#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #covidlonghaulers #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #postviralfatiguesyndrome #postviralsyndrome #pvfs #PostViralIllness
🧵
Sympathetic TIME article focusing on #PostCovid & #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome with quotes from Lucinda Bateman, @virusesimmunity & Nancy Klimas
“It Isn't Just #LongCOVID. Post-Viral Illnesses Are More Common Than You Think”
https://time.com/6240058/post-viral-illnesses-common-long-covid/
#MEcfs #PwME #CFSME #CFIDS @mecfs #postviral #PostViralIllness #PostViralSyndrome #postviralfatiguesyndrome
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#PostCovid #MyalgicEncephalomyelitis #LongCovid #mecfs #pwme #cfsme #cfids #postviral #PostViralIllness #postviralsyndrome #postviralfatiguesyndrome
"9 tips for surviving Christmas with ME/CFS/PVF*" (2014)
http://www.eat4.me/9-tips-for-surviving-christmas-with-mecfspvf/
*Post-Viral Fatigue
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #NeuroME #Spoonie #LongCovid #PostViralFatigueSyndrome #PVFS #postviralillness @mecfs
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #meeps #cfsme #NeuroME #spoonie #LongCovid #postviralfatiguesyndrome #pvfs #PostViralIllness