mayday · @mad_mayday
292 followers · 823 posts · Server spore.social

2/

β€œNow, more than ever, we need a robust health system with well-paid staff, and a new focus on the research and treatment of post-viral illness.

Not as a psychosomatic phenomenon, but as a severely disabling physical disease that can and does kill people.”

@longcovid

#myalgicencephalomyeltis #ChronicFatigueSyndrome #PostViral #postviralillness #postviralsequelae #PostViralSyndrome #LongCovid

Last updated 2 years ago

LongCovidKids · @LongCovidKids
1445 followers · 137 posts · Server mas.to

Have you signed up to our newsletter?
Would you like to learn more about Long Covid in children?
Our work?
Our team?
How you can support LCK?
Did you know you can find our newsletter archive here?

longcovidkids.org/newsletter

#postviralillness #childhoodillness #childhood #news #newsletter #research #charity #donate #health #child #sundayvibes #LongCovid #LongCovidKids

Last updated 2 years ago

"When you ask me how I'm doing and I say "I'm functioning" this is what I mean"

Picture: Broken wash hand sink, most of the bowl frame cracked and broken off. Tap is running water into the plug hole.

#mecfs #fibromyalgia #postviralillness #LongCovid #myalgicencephalomyelitis

Last updated 2 years ago

LongCovidKids · @LongCovidKids
1391 followers · 117 posts · Server mas.to

One of the most common symptoms experienced by children and young people with Long Covid is extreme exhaustion or 'Energy Limitation'.

This blog looks at how children describe their extreme exhaustion & how they use our Pacing Penguins poster.

longcovidkids.org/post/pacing-

#teenagers #children #resources #childhood #penguins #postviralillness #mecfs #pacing #LongCovidKids #LongCovid

Last updated 2 years ago

Kim · @Wadingthroughtreacle
173 followers · 367 posts · Server mstdn.social

RT @ME_LisaZett@twitter.com

Ageing with this illness is weird. I never feel my own age. I feel like I'm stuck at the age I was when I became ill and about 100 years old at the same time

πŸ¦πŸ”—: twitter.com/ME_LisaZett/status

#housebound #postviralillness #spoonie #mecfs

Last updated 2 years ago

Broadwaybabyto πŸ¦‹ · @broadwaybabyto
148 followers · 234 posts · Server zeroes.ca

Since this has been my new social media home for a few weeks - figured I should pin an post! I’m a former freelance theatre critic. Now & interested in , , , , & more. Love , , , , and . Passionate about , & more. based but dreams of .

#introduction #disabled #LongCOVID #postviralillness #mecfs #pots #mcas #theatre #britpop #sondheim #reading #writing #cows #disabilityrights #socialjustice #toronto #scotland

Last updated 2 years ago

Broadwaybabyto πŸ¦‹ · @broadwaybabyto
107 followers · 160 posts · Server zeroes.ca

@LongCovidAdvoc hello! I had and before Covid hit but it’s likely I also had Covid Jan 2020 (before testing) and it ruined my baseline. Developed neutropenia and other immune issues and severe GI issues. Looking to connect with others and stay on top of research.

#postviralillness #pots #mcas #LongCOVID

Last updated 2 years ago