#ChronicHealth life:
Box just arrived with #knuckle splint for long term as-needed joint protection after knuckle replacement required by 20 years of medication-resistant #rheumatoid disease.
*probiotic #gummies to help control long-term IBS and current effect of cephalexin because of a (fortunately rare) UTI.
*fiber gummies for IBS.
I think I'll roll my #powerchair (which I use because of rheumatoid disease and chronic ankle problems after fracture caused because of #osteoporosis after #prednisone needed during RA flares) down to the city arts #festival today and have a #beer and buy some #art.
#rheumatoidArthritis #mobility #livingTheDream
#ChronicHealth #knuckle #rheumatoid #gummies #powerchair #osteoporosis #prednisone #festival #beer #art #rheumatoidarthritis #mobility #livingthedream
If you are in #SanFrancisco then keep an eye to see if you can notice the #powerchair #stolen to our friend @lizzard - here is a photo:
https://mastodon.social/@lizzard/110601041926892288
Boost a lot, thanks!
#stolen #powerchair #sanfrancisco
Are there any written battery health maintenance guides?
How far does the battery need to go down before charging?
How often should it be charged if I only go 2 miles a day?
Is the battery pack supposed to reach to solid green when fully charged?
Does it affect battery life if I have to charge between each meal?
There are 14 hours between dinner and breakfast, should that be enough time to charge it?
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I value the independence my #Jazzy #PowerChair gives me.
However, I am having issues with it staying charged. Have messaged the company I bought it from several times.
Their only reply is call and do a talky.
Except. I am DeafBlind. I see better than hear. My memory and comprehension of speech doesn't exist.
I gave up today, and emailed the company that manufactures them.
Does anyone have the ability and time to answer a few questions?
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UnCoveredMyths is the home three authors.
Abby Brown writes #NonFiction and #FindingFamily Fiction
Abagail Brown writes #SurvivorFiction
Gail Brown writes #ScienceFiction, #HopePunk, and #SolarPunk. Former Novels, Currently, #ShortStories.
I also enjoy #Writing and #Reading. I will occasionally mention when one of my books are free on Amazon.
I an #Disabled, #DeafBlind have #MCAS, #EhlersDanlosSyndrome, #EDS, and #Celiac. Due to EDS, I use a #PowerChair.
#powerchair #celiac #eds #ehlersdanlossyndrome #mcas #deafblind #disabled #reading #writing #shortstories #solarpunk #hopepunk #sciencefiction #survivorfiction #findingfamily #nonfiction
I did figure out how to make a fleece "bucket" for my power chair.
That back corner of my hips were never covered with the blanket laying over it, so they would get icy in the halls. Even with four layers on!
So I took a piece of fleece that was about a foot wide, an long enough to cover the seat and go up to the arms and over them. Have to adjust it occasionally. Keeps my hips warmer.
#neisvoid #disability #powerchair
I did figure out how to make a fleece "bucket" for my power chair.
That back corner of my hips were never covered with the blanket laying over it, so they would get icy in the halls. Even with four layers on!
So I took a piece of fleece that was about a foot wide, an long enough to cover the seat and go up to the arms and over them. Have to adjust it occasionally. Keeps my hips warmer.
#neisvoid #disability #powerchair
It is too much work to try to get it tucked in. And I need a table or chair nearby to help get all the layers organized.
I really don't know how to deal with it.
So tired of icy buildings.
Trying to keep from breaking out in bubbly full body hives!
#powerchair #disability #neisvoid
Topic: #PowerChair blanket.
The building I live in is not warm. I keep a fleece blanket folded into a fourth its size over my legs.
However, sitting in my power chair, part of my hips gets cold everytime I go in the building.
The blanket misses that part about a hand size on each side.
And I wear flannel pants and heavy winter pants.
I can feel the ice hitting the lower hips.
I have tried a smaller long blanket underneath, and try to tuck it under my hips. Too much.
#powerchair #disability #neisvoid
A community in County Tyrone got together in 2019 to upgrade the powerchair of a man living on his family's farm who wanted to be able to help out with the work. Since then various attachments have, presumably, been manufactured or adapted because as well as the more conventional trailers, he even has a snow plough!
#GoodNews #Farm #Wheelchair #Powerchair #Disability #Access #Community
#goodnews #farm #wheelchair #powerchair #disability #access #community
argh! tripped over a powerchair wheel earlier and the move I made to save myself has pulled my shoulder. That's twice in two days. friggin kitchen refit has meant loads of stuff has had to be moved, including where BFF stores her chair when it's not in use. There's basically about 5ft between her chair and mine. Seeing as my body doesn't know what straight means, I'm left trying to go between them and not catch on anything, which fails sometimes. #Blind #PowerChair #Disability #Kitchen #Accessibility
#blind #powerchair #disability #kitchen #accessibility
I generally post about #Disability, #MCAS, #EhlersDanlosSyndrome, #EDS, and #Celiac.
Due to EDS, I use a #PowerChair.
I also enjoy #Writing and #Reading. I will occasionally mention when one of my books are free on Amazon. If you need a copy, please let me know.
I am #DeafBlind, and write about #Accessibility.
Things I miss: Gardening, Sewing, Crafting, Crocheting, Cooking, Baking, Knitting, Walking, Hiking, Exploring.
Photos are rare, as words are easier to use to explain concepts.
#disability #mcas #ehlersdanlossyndrome #eds #celiac #powerchair #writing #reading #deafblind #accessibility
More #shenanigans from yesterday (I was tired and forgot last night, okay, lol): I managed to accidentally lock the arm of my #powerchair upright after flipping it up to pick up something I dropped, and it took us way too long to figure that out lmfao. Shout out to the patient people who were also definitely laughing at us.
RT @IamSarahJayJay2@twitter.com
PLS RT
#Powerchair #wheelchair #disabilty #Kent #London https://twitter.com/IamSarahJayJay2/status/1608938717884059651
🐦🔗: https://twitter.com/IamSarahJayJay2/status/1608938843482492928
#powerchair #wheelchair #disabilty #kent #london
I was already loving this video, and then there was a performer using a power wheelchair and I was *heart eyes*
Meesha Shafi - Rajkumari (Official Music Video)
#MeeshaShafi
#Rajkumari
#Pakistani
#PakistaniCanadian
#Canadian
#Music
#MusicVideo
#Wheelchair
#PowerWheelchair
#Powerchair
#meeshashafi #rajkumari #pakistani #pakistanicanadian #canadian #music #musicvideo #wheelchair #powerwheelchair #powerchair