FedSearch - Federated network search engine

Rachel Kress · @mossfactory

11 followers · 61 posts · Server glasgow.social

Stephen Hill, expert from experience, on being involved in health research and why people should be involved in #Research.

Sadly, the questions are asked only visually but Stephen's thoughts still tell enough.

#Engagement #Accessibility #A11y #UserResearch #PublicInvolvement

https://www.youtube.com/watch?v=QEX3mOeujjE

#publicinvolvement #userresearch #a11y #accessibility #engagement #research

Last updated 2 years ago

Original post

Alzheimer Europe · @AlzheimerEurope

53 followers · 144 posts · Server mastodon.world

Another great discussion with the eBRAIN-Health Public and Patient Advisory Group on 14 March. The members were consulted on topics related to #AI, the #EUAIAct & #digitalbraintwins 🧠 Looking forward to the next meeting!
#PublicInvolvement
https://www.alzheimer-europe.org/news/ebrain-health-public-and-patient-advisory-group-members-gather-online-their-second-project

#ai #euaiact #digitalbraintwins #publicinvolvement

Last updated 2 years ago

Original post

ADIS_JPND · @ADIS_JPND

5 followers · 28 posts · Server mastodon.world

Open media

A big thank you to all who joined the Advisory Board consultation about the value of being informed of having #Alzheimer’s disease! #PublicInvolvement

Interested in the discussion? ⤵️
https://www.adis-project.eu/adis-advisory-board-discusses-the-value-of-being-informed-of-having-alzheimers-disease/

#alzheimer #publicinvolvement

Last updated 2 years ago

Original post

Alzheimer Europe · @AlzheimerEurope

52 followers · 71 posts · Server mastodon.world

We were pleased to participate in the @JPNDeurope funded @ADIS_JPND project General Assembly meeting & presenting on our #PublicInvolvement & #communication work!Read more about the meeting:
https://www.alzheimer-europe.org/news/adis-partners-meet-general-assembly-meeting-tel-aviv-israel
#PrecisionMedicine #Alzheimer #EarlierDiagnosis

#publicinvolvement #communication #precisionmedicine #alzheimer #earlierdiagnosis

Last updated 3 years ago

Original post

Alzheimer Europe · @AlzheimerEurope

52 followers · 63 posts · Server mastodon.world

The eBRAIN-Health Public and Patient Advisory Group gathered online for its first meeting on 8 February!
Plenty of enthusiasm from the members and very insightful discussions about the #ethics of #digitalbraintwins
#PublicInvolvement
https://www.alzheimer-europe.org/news/ebrain-health-public-and-patient-advisory-group-members-gather-their-first-online-consultation

#ethics #digitalbraintwins #publicinvolvement

Last updated 3 years ago

Original post

ChrisBintener · @ChrisBintener

38 followers · 35 posts · Server mastodon.world

Open media

Great to be joining this presentation by my @AlzheimerEurope colleague @Sori_Moradi.
Already looking forward to be working together on an awareness raising campaign on the value of participating in @ADIS_JPND.
---
RT @ADIS_JPND
Next up #ADISassembly, a topic that is close to our hearts as researchers and advocators #PublicInvolvement!
We’ll discuss:
- Opinions & values of ppl w dementia
- Involvement in @ADIS_JPND
- Perspectives of nat…
https://twitter.com/ADIS_JPND/status/1620724435291631617

#adisassembly #publicinvolvement

Last updated 3 years ago

Original post

ADIS_JPND · @ADIS_JPND

4 followers · 19 posts · Server mastodon.world

Open media

Next up #ADISassembly, a topic that is close to our hearts as researchers and advocators #PublicInvolvement!
We’ll discuss:
- Opinions & values of ppl w dementia
- Involvement in @ADIS_JPND
- Perspectives of national #Alzheimer’s associations in #Europe
https://www.adis-project.eu/public-involvement/

#adisassembly #publicinvolvement #alzheimer #europe

Last updated 3 years ago

Original post

ADIS_JPND · @ADIS_JPND

4 followers · 8 posts · Server mastodon.world

Open media

We're pleased to report on the first meeting of our #AdvisoryBoard aimed at gaining perspectives, priorities and concerns on various topics around the @ADIS_JPND project through #PublicInvolvement.

Find out more about our @JPNDeurope funded work:
https://www.adis-project.eu/the-members-of-the-adis-advisory-board-meet-for-their-first-online-consultation-terminology-tone-and-content-during-the-informed-consent-process/

#advisoryboard #publicinvolvement

Last updated 3 years ago

Original post

Chicilee · @Chicilee

3 followers · 4 posts · Server mastodon.world

This campaign from #MSF made me smile this morning. I think it also aligns well with #PatientEngagement and #PublicInvolvement ideas and values.

https://youtu.be/8DFemg94ufU

#MSF #PatientEngagement #publicinvolvement

Last updated 3 years ago

Original post

Al · @mral

18 followers · 333 posts · Server mastodon.sdf.org

@psztrnk thanks.
https://mastodon.sdf.org/@psztrnk/109442130146045109
I think people helping out the folks that the people #hire to run their #government would be a good thing.
We should expect the folks that we hire to work with us. #publicInvolvement should be more
than speaking in a 3 minute allow time at a public meeting.
#crossWalks #DIY

#hire #government #publicinvolvement #crosswalks #diy

Last updated 3 years ago

Original post

Soph_fedorowicz · @soph_fedorowicz

26 followers · 3 posts · Server mastodon.world

My paper about using social media to support the #PPIE strategy of a large scale University led #Health research project is available #OpenAccess here ⬇️⬇️⬇️ #PublicInvolvement #LivedExperience #PatientExperience

https://onlinelibrary.wiley.com/doi/10.1111/hex.13515?s=09

#ppie #health #openaccess #publicinvolvement #livedexperience #patientexperience

Last updated 3 years ago

Original post