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Tom Kindlon · @tomkindlon
779 followers · 2097 posts · Server disabled.social
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#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
778 followers · 2084 posts · Server disabled.social

Medically Documenting Disability in / (ME/CFS) Cases (2019)

shorturl.at/hERST

Coauthored by the lawyer who prevailed on the disability case of @brianvastag disability case and a clinician who has done many ME/CFS disability cases

@mecfs

Probably of use to some with @longcovid

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #mye #me #millionsmissing #cfsme #cfids #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
778 followers · 2083 posts · Server disabled.social

#spoonie #chronicillness #fatigue #fatiguetips #chronicfatigue #chronicfatiguesucks #pacing #rest #resting #mecfs #cfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mye #me #millionsmissing #cfsme #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2079 posts · Server disabled.social

Induces & Suppresses Peroxisomes in the Brain

shorturl.at/dhmrZ

“The present studies point to a role of persistent neuroinflammation, especially inflammasome activation, and peroxisome biogenesis factor suppression as contributing determinants of the neurological sequelae of -19”

@longcovid @covid @covid19 @novid

#COVID19 #neuroinflammation #covid #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid #COVID_19 #sarscov2 #novid #CovidIsNotOver

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2078 posts · Server disabled.social

New from Italy
Structural & functional impairments of skeletal muscle in patients with post-acute sequelae of infection

shorturl.at/csvyX

“In our cohort of patients with , we showed limited exercise tolerance mainly due to ‘peripheral’ determinants. Substantial reductions were observed for biomarkers of mitochondrial function, content, & biogenesis”

@longcovid @covid @covid19

#sarscov2 #PASC #LongCovid #pwlc #lc #PostCovid #covidー19 #COVID19 #covid #COVID_19

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2078 posts · Server disabled.social

2/

“Fecal transplantation from subjects to germ-free mice led to lung inflammation & worse outcomes during pulmonary infection by multidrug-resistant Klebsiella pneumoniae. transplanted mice also exhibited poor cognitive performance. Overall, we show prolonged impacts of infection on the gut microbiota that persist after subjects have cleared the virus”

@longcovid
@covid

#PostCovid #sarscov2 #LongCovid #pwlc #postcovidsyndrome #lc #covidー19 #COVID19 #covid #COVID_19

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2076 posts · Server disabled.social

Gut microbiota from patients with cause alterations in mice that resemble post- symptoms

shorturl.at/ipuvH

“we report the gut microbiota of subjects had a remarkable predominance of Enterobacteriaceae strains with an antibiotic-resistant phenotype compared to healthy controls. Additionally, short-chain fatty acid (SCFA) levels were reduced in feces”

@longcovid
@covid19

1/

#COVID19 #covid #PostCovid #LongCovid #pwlc #covidー19 #COVID_19 #sarscov2 #novid #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2075 posts · Server disabled.social

reservoir in post-acute sequelae of (). Review by 33 authors

shorturl.at/knoUX

“we explore evidence for SARS-CoV-2 reservoir in PASC & provide context on interpretation of the findings. We delineate mechanisms by which a SARS-CoV-2 reservoir may contribute to PASC pathology & identify central research priorities & methods to guide the continued study of SARSCoV2 persistence in PASC”

@longcovid

#sarscov2 #COVID19 #PASC #LongCovid #pwlc #PostCovid #covidー19 #covid #COVID_19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2075 posts · Server disabled.social

New research hints at a connection between post-acute sequelae of & an antibody response biased against the endemic OC43 in rheumatic disease

shorturl.at/iwzJ0

“Rather than identifying an autoimmune marker of PASC, these results from 2 independent cohorts point to immunological imprinting by human endemic coronaviruses in patients with SARDs & may result in the generation of incomplete immunity, control, & clearance”

#COVID19 #Coronavirus #PASC #sarscov2 #LongCovid #PostCovid #pwlc #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2072 posts · Server disabled.social

Australia National Health & Medical Research Council

1st round of Medical Research Future Fund grants for $14m of allocated $50m for . The 4 streams include people's experience of Long , population data & health service impact, biological mechanisms & prognosis, & building national capability for assessing treatments. Closing date for applications: October 18

shorturl.at/jrvJ1

@longcovid @covid @covid19

#LongCovid #covid #pwlc #PostCovid #covidー19 #COVID19

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2067 posts · Server disabled.social


Many more UK people with ME/CFS are needed for this large genetic study. All severity levels can take part as participation is from home

Questionnaires can be filled in on paper or online, and saliva samples for DNA extraction are sent by post. The target is 25000 DNA samples, incl. 5000 diagnosed with ME/ following infection

decodeme.org.uk/portal/

@mecfs

1/

#decodeme #cfs #COVID19 #pwlc #lc #mecfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mye

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2065 posts · Server disabled.social

8/

"It’s discouraging and isolating, especially when you feel that you can’t make plans simply because you do not know that you’ll be able to carry them out."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Anna · @halcionandon
97 followers · 150 posts · Server disabled.social

Please help me find a or any willing to prescribe patches (or dose equivalent) within 13 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me bc my case is too complex). Changed his mind! Now have 13 days to find any doctor to write a script or agony & no control.

Time running out fast!😫

appreciated!


@chronicpain @mecfs

@longcovid @chronicillness

#gp #doctor #fentanyl #melbourne #australia #withdrawal #pain #boosts #chronicpain #MedMastodon #pwme #pwlc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2060 posts · Server disabled.social

7/

"You may have to start cancelling plans, which can leave you feeling flaky and unreliable, especially when those plans were with someone that saw you on a good day recently."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2059 posts · Server disabled.social

6/

"Fluctuating conditions are also shockingly unpredictable, especially at first, when you don’t know what will trigger a flare or are not yet experienced enough to recognize the warning signs."



@chronicillness @spoonies @mecfs @longcovid

#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2056 posts · Server disabled.social
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New:
Pre-pandemic activity on a / support forum is highly associated with later activity on a support forum for a variety of reasons: A mixed methods study

Free
journals.plos.org/plosone/arti

This is sympathetic

@mecfs
@longcovid

1/

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #LongCovid #mecfs #cfs #pwme #myalgice #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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ahimsa · @ahimsa_pdx
920 followers · 9686 posts · Server disabled.social
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From

"Since the beginning of , we have emphasized that your story matters. A story can change the world. An image can speak to our souls. Our collective action can effect change. is our drumbeat for telling those stories"

1/n

#meaction #millionsmissing #mecfs #pwme #LongCovid #pwlc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2033 posts · Server disabled.social

“Trial By Error: Call for Retraction of Cochrane Review from Science For ME; Overview of Viral Persistence in Long ; (US) Senators United on ” by David Tuller DrPH (September 7)

surl.li/kxbew

@mecfs  @longcovid
@covid @covid19

#covid #LongCovid #mecfs #cfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #postcovidsyndrome #PostCovid #covidー19 #COVID19 #COVID_19 #sarscov2

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2033 posts · Server disabled.social
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Medscape have updated their free CDC-funded CPD course on

I never looked in detail at the previous course but this looks quite similar

It can be accessed with free registration.

medscape.org/viewarticle/99577

@mecfs @longcovid

#mecfs #MyalgicEncephalomyelitis #chronicfatiguesyndrome #MedEd #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #MedMastodon

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2029 posts · Server disabled.social
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From: Bateman Horne Center
@BatemanHorne

Introducing video 6 of the Post-Exertional Malaise series, Neurobiological Changes

👉 View the entire PEM video series: bit.ly/3s4a3us

@mecfs
@longcovid

#PEM #pese #merc #medicaleducation #millionsmissing #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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