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ContraindiKate · @ContraindiKate

21 followers · 97 posts · Server disabled.social

I've lived for more than 30 years with ME/CFS symptoms that have sometimes kept me bedbound or homebound for months but also were sometimes mild enough for me to work full time for several months in a row. So I am not at all surprised by the finding that people with long COVID sometimes think they're better and then are very much not.

#longCOVID #mecfs #pwmecfs

https://www.ucsf.edu/news/2023/08/425961/long-covid-symptoms-can-emerge-months-after-infection

#LongCovid #mecfs #pwmecfs

Last updated 2 years ago

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One Fetchy Friend · @FarFetched

12 followers · 107 posts · Server kolektiva.social

I think the big issue with GET, is that it sounds SO appealing, so it can be hard to turn it down

Having a medical professional tell you its possible to get over ME if you just exercise in the right ways, is somewhat the sirens call of chronic illness

#pwMEcfs #mecfs #pwme

#pwmecfs #mecfs #pwme

Last updated 2 years ago

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ContraindiKate · @ContraindiKate

7 followers · 37 posts · Server disabled.social

Some days life happens and I have to layer #PEM upon #PEM until I'm just a big pain lasagne, a mess of ground meat and dizzy sauce and flat pasta #mecfs #MyalgicEncephomyelitis #pwmecfs #pwme #PacingIsForRichPeople

#PEM #pacingisforrichpeople #mecfs #myalgicencephomyelitis #pwmecfs #pwme

Last updated 2 years ago

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Tom Kindlon · @tomkindlon

562 followers · 896 posts · Server disabled.social

Open media

I have just donated to David Tuller.

I only get to read some of what he writes these days but it’s reassuring to know he's keeping a close eye on the output from those from the biopsychosocial viewpoint who have caused so many problems over the years

Donate link: https://bit.ly/40kHhkY

@mecfs @cfs @longcovid #MyalgicEncephalomyelitis #myalgice #pwme #PwMEs #pwmecfs #pwlc #LongCovid #PostCovid #PostCovid19 #cfs #cfsme #CFIDS #PostViralIllness #PostViralSyndrome