Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave

I’m so fucking angry. For the first time since diagnosis I have new lesions. Nearly eight years with nothing new on my #MRI and suddenly multiple new lesions. I’ve had a day to sit with it so I no longer feel like I’ve been punched in the gut. But even still. I’m so disappointed. I’d almost tricked myself into believing it was going away. Fuck you, MS. #fums #rrms #ms #multiplesclerosis #pwms #chronicillness #brainlesions

New research on potential influence of gut bacteria on #multiplesclerosis. I find this interesting. Maybe it will lead to new treatments for those of us with #ms? #PwMS #chronicillness
https://pubmed.ncbi.nlm.nih.gov/36604748/

I am so frustrated by the tingly and numbness that I’ve had recently. Shooting down my arms to my fingertips. It was getting better and then I got #covid and it’s now much worse. Anyone else with #multiplesclerosis deal with this and find something that makes it go away? Usually I just wait it out. #fums #PwMS #numbness #chronicillness

@sburall

If you don't have a neuro already, then going through your general practitioner and working your way into a referral is your best move, but it looks like you've already done that.

I know some #PwMS just go straight to the ER... but it's the worst time of the year to do that, and, well, there's a Tripledemic on right now...

I'm sorry you're going through all that. You need relief! Sending you healing wishes that symptoms subside quickly!

I vote that every time I’m too sick to work for a few days that I get to have the #WorldCup to keep me company. Can we make that an official thing?
Then again, I got through my first major bout with #multiplesclerosis by binging Game of Thrones. So maybe just stuff I find engaging to watch is fine…)
#worldcup2022 #distraction #covid #covidthoughts #PwMS

@ahimsa_pdx I believe this is true for #PwMS (people with #MS/#MultipleSclerosis)

@berdandy I’d never seen that hashtag. I dig it. Thanks for sharing. #PwMS

I seem to be in the minority, but I vastly prefer #PwMS (person/people-with-multiple-sclerosis) over #MS (Microsoft?) or the lengthy #MultipleSclerosis.

I think I picked up that terminology habit from the ms-selfie newsletter - a good resource if #PwMS haven’t heard of it. With the caveat that the author is a UK neurologist, so not always applicable: https://open.substack.com/pub/gavingiovannoni

#noxp

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related and still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne