2/2

…

Last night I was swollen and swelling. I had to keep adjusting my Fitbit-strap to loosen it. This morning I woke up, my body having returned to its normal, non-Michelin-man size, and the Fitbit was dangling over my hand. Thankfully I have large (per kitchen-glove sizing) paws, so the contraption could not fall off.

#pwOA #arthritis

1/2

One of the things about having #arthritides is that one can never be certain of one’s size at any given moment. For that reason, inter alia adaptable waistlines and ensuring that close-fitting clothing is never worn are essential. As are easily changed wrist-straps for jewellery.

…

#pwOA #arthritis

Remembering twelve years ago today being able to read not one but two books in the same day! Now I am limited to reading webcomics and small snippets of text. As dancing was my favourite physical activity, reading was my fave cerebral pastime. This malfunctioning body has taken too much joy from my existence.

#MyalgicEncephalomyelitis #pwME
#Fibromyalgia #pwFM
#Osteoarthritis #pwOA

Plus getting back into bed. Then even drinking requires two handed co-ordination so as to minimise spillage from shakes & spasms. I also recalled to select a biscuit, so I not only drank but also had sonething to eat!

#pwME #pwFM #PwOA

For the first time in a couple of weeks or so I managed to make myself a hot-drink via the Senseo in housemate’s room. It requires:

a return hobble of no more than 10 metres;
selecting drink;
selecting cup;
loading machine;
selecting programme;
instigating drink-making;
trying not to fall down whilst waiting;
switching off Senseo;
opening lid to air;
picking up cup;
then transferring back to my room without spilling.

Plus getting back into bed.

#pwME #pwFM #PwOA

@Splodgenoodles I also am officially diagnosed as a #pwME, a #pwFM & a #pwOA inter alia other maladies. I both hear & feel you. {{{gentle}}}

@tacosubpizza I have never seen the perm previously, but have every intention of using it in the future - #painsomnia ! Brilliant!

#pwME #pwFM #pwOA
#ChronicIllness #ChronicPain

#pwME #pwFM #pwOA
#SevereME

Do other folks experience some pains as sounds? For me some hum, others have a high-pitched whistling-sound.

#Pain #ChronicPain

Since #carers stopped coming in early Dec., I leave my bed even more rarely as donæ feel safe if no-one around or due to be. Had my first #fall of 2023 en route to wc. No damage done. Just a tad shaken. 🙏🏻

#pwME #pwFM #pwOA
#MyalgicEncephalomyelitis #SevereME
#Fibromyalgia
#OsteoArthritis

#SocialCare #SocialCareCrisis

See my previous post for the context for posting this piece of #poetry. My second #dance #poem is entitled “Bruised Reed”:

https://crippledqueeranglo-europeanranter.blogspot.com/2012/08/bruised-reed.html

#ChronicIllness #Disability #pwME #pwFM #pwOA

I have not long since finished viewing a film (see previous post) which included #dance as a driving-force. It reminded me of how much I adored #dancing, of moving rhythmically, of meeting, discovering & partnering space. I remembered that I had written a couple of #poems about what dance meant to me & my life. Herewith “All Back”:

https://crippledqueeranglo-europeanranter.blogspot.com/2013/05/all-back.html

#ChronicIllness #Disability #pwME #pwFM #pwOA

May be of interest to #pwME & #pwLC (#pwOA also mentioned). This article (link to #HealthRising website below) is too long & too technical for my poor brain-fogged brain. But the gist seems to be that this area of research ought to be promising.

#MyalgicEncephalomyelitis #LongCovid

https://www.healthrising.org/blog/2022/12/13/pea-luts-long-covid-chronic-fatigue-syndrome-fibromyalgia/?fbclid=IwAR2sK6c7aEaLREG-V1p7zyOllIkj7nxj63gOqz-KyjeFt41MlfAtZNGtuGM

#Pain #ChronicPain #ChronicIllness
#pwME #MyalgicEncephalomyelitis #SevereME
#pwFM #Fibromyalgia
#pwOA #OsteoArthritis #Arthritis

[Sorry due to #Disabilities, incl. above, I cannæ type text from meme.]

Before becoming so badly #bedridden, I used to regularly sort and tidy my cupboards & drawers. This drawer had not been done for several years. A good friend sat next to me and helped me with the task. I had to throw away a green-refuse bag full of decaying comestibles! But look at it now - the order, the beauty….!!! #pwME #pwFM #pwOA