MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.worldAre you interested in reading more about the #experiences of people living with #RareConditions?
Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#Experiences #rareconditions #familyperspectives #rarediseaseday #PatientEngagement #patientinvolvement #medipace
Balsam · @Balsam
49 followers · 154 posts · Server toot.community#ExpertPatients👇True more for patients #RareConditions
No one should be gaslighted for asking/seeking a 2nd medical view. Sadly some #medics do. Our experience: best doctors were #humble acknowledged limitations in knowledge, sought patients’ views & those of other colleagues.
#expertpatients #rareconditions #medics #humble