· @craftygardennz
1297 followers · 5920 posts · Server mastodon.nzGreat news for those like me who have Raynaud's disease, the genes responsible have been found. #raynauds
· @craftygardennz
1272 followers · 5704 posts · Server mastodon.nzStupid Raynauds. Can't get warm today, especially my foot with my bandage toe.
Dee (she/her) · @deeruddock
78 followers · 79 posts · Server mindly.social
Elisabeth Kugler · @KuglerElisabeth
182 followers · 102 posts · Server mstdn.scienceIt's #autoimmuneAwarenessMonth
As scientist, I am fascinated.
As patient, I am terrified.
Incredibly lucky to have an excellent care team .@LeedsHospitals!
#scleroderma #dermatomyositis #raynauds @NHSEngland
#autoimmuneawarenessmonth #scleroderma #Dermatomyositis #raynauds
Elisabeth Kugler · @KuglerElisabeth
182 followers · 102 posts · Server mstdn.science
28 FEBRUARY is Rare Disease Day.
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
#rareDisease #scleroderma #Dermatomyositis #Raynauds #noCure
@rarediseaseday @sruk
#raredisease #scleroderma #Dermatomyositis #raynauds #nocure
Jo Southall · @JBOccyTherapy
19 followers · 28 posts · Server lgbtqia.space
Sometimes the smallest things can give you the biggest realisations. I started these socks a full year ago as a "quick project" and I've only just finished them. I guess I have been pretty busy. How long is it acceptable to pretend it's "busier than normal" before admitting that "busy is normal"?
Secondary realisation, #PureWool chunky socks are much better than my worn out slippers, layered thin socks or any other combination of things I've been wearing all winter. I must take a lesson from the ancestors and just wear my #VikingReenactment kit more often. Literally couldn't feel the cold tiles at all through these beauties.
#Alafosslopi yarn in #JorvikStitch / #YorkStitch. #Nålbinding.
#purewool #vikingreenactment #alafosslopi #jorvikstitch #yorkstitch #nalbinding #raynauds #heritagecrafts #woolsocks #vikingcrafts
Jo Southall · @JBOccyTherapy
19 followers · 28 posts · Server lgbtqia.space
Sometimes the smallest things can give you the biggest realisations. I started these socks a full year ago as a "quick project" and I've only just finished them. I guess I have been pretty busy. How long is it acceptable to pretend it's "busier than normal" before admitting that "busy is normal"?
Secondary realisation, #PureWool chunky socks are much better than my worn out slippers, layered thin socks or any other combination of things I've been wearing all winter. I must take a lesson from the ancestors and just wear my #VikingReenactment kit more often. Literally couldn't feel the cold tiles at all through these beauties.
#Alafosslopi yarn in #JorvikStitch / #YorkStitch. #Nålbinding.
#purewool #vikingreenactment #alafosslopi #jorvikstitch #yorkstitch #nalbinding #raynauds #heritagecrafts #woolsocks #vikingcrafts
S t a c i e · @StacieBee
392 followers · 4093 posts · Server mastodon.social
My Raynaud’s is already acting up in both hands and the arctic air just arrived here. Not looking forward to snow. The high today is 3°C (37.4 °F). 😩
#raynauds #arcticair #imovedheretogetawayfromwintrycanada
S t a c i e · @StacieBee
353 followers · 3509 posts · Server mastodon.socialIt’s sure raining out there. Glad to be back home after a walk with a friend. 🌧️☔️🌲
I have Raynaud’s and it was particularly bad while I was out in the downpour after work. I’m just waiting for the feeling to come back to one of my fingers. I was wearing gloves. Sigh.
#WFH #LoggedOut #NatureIsCalling #TakingMyselfOutForAWalk #raincouver #NorthVan #raynauds
#wfh #loggedout #natureiscalling #takingmyselfoutforawalk #raincouver #northvan #raynauds
Frog · @dr3amfr0g
22 followers · 101 posts · Server mstdn.socialFellow #spoonies if you have #raynauds and get a cold nose, what do you do to warm it back up? I have gloves for my hands, socks for my feet, but... Is there a such thing as nose gloves? #chronicillness
#chronicillness #raynauds #spoonies
dystobot · @dystobot
6 followers · 1085 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1613605538851323921]
RT @LunaRivera96: Diagnosis Journey of Chronic Illness
#SLE #lupus #Fibromyalgia #chronicillness #cancer #diabetes #epilepsy #sjogrens #lymedisease #MultipleSclerosis #rheumatoidarthritis #raynauds #crohnsdisease #CRPS #osteoarthritis #ankylosingspondylitis #dystonia #Dysautonomia #Chiari https://t.co/30OzuFhccO
#SLE #Lupus #fibromyalgia #chronicillness #cancer #diabetes #epilepsy #Sjogrens #lymedisease #MultipleSclerosis #rheumatoidarthritis #raynauds #crohnsdisease #crps #osteoarthritis #AnkylosingSpondylitis #dystonia #Dysautonomia #chiari
dystobot · @dystobot
6 followers · 1040 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1613202879535267842]
RT @LunaRivera96: It's normal to be angry about your illness!
#SLE #lupus #sjogrens #Fibromyalgia #dystonia #chiari #raynauds #rheumatoidarthritis #arthritis #MultipleSclerosis #cancer #lymedisease #gout #crohnsdisease #CRPS #osteoarthritis #IBS #LongCovid #cancer #sicklecell #diabetes #epilepsy https://t.co/I19SOss7It
#SLE #Lupus #Sjogrens #fibromyalgia #dystonia #chiari #raynauds #rheumatoidarthritis #arthritis #MultipleSclerosis #cancer #lymedisease #gout #crohnsdisease #crps #osteoarthritis #ibs #LongCovid #SickleCell #diabetes #epilepsy
dory · @isilzha314
71 followers · 248 posts · Server infosec.exchange
I was finally able to load up my #nomanssky save file tonight. :blobfistbumpA:
Had some problems getting the hang of the Move controllers with it again, though. No problems handling the #psvr other than standing with my legs locked too long.
One of the things #raynauds means is I overheat quickly, so the room where all my gear lives is cold. Easy in winter. When I'm not actively exercising, I need layers though, so today's shirt during breaks and while just standing. #WeHackHealth #kinesiology
#nomanssky #psvr #raynauds #WeHackHealth #kinesiology
old man river · @pipp100
55 followers · 827 posts · Server mastodon.scot2
Problem is I having #Raynauds & #Erythromelalgia. When I warm up, cold agony pain becomes burning agony pain.
https://www.nhs.uk/conditions/erythromelalgia/#:~:text=Erythromelalgia%20is%20a%20rare%20condition,are%20only%20affected%20as%20adults.
Sahil · @emotionsdrown
27 followers · 78 posts · Server mas.to
Cat Herding Science Nerd 🔬 · @catladyactivist
725 followers · 199 posts · Server ohai.social#Dysautonomia + Raynaud's is drinking cold coffee instead hot & having your extremities all turn a dusky white & still feel frozen to the touch after 40 minutes in front of a powerful space heater. It's hard to break the cold once it sets in. 🥶
#COVID - the gift that keeps on giving. 😪
#dysautonomia #covid #longcovid #raynauds
CurlyCait · @CurlyCait
652 followers · 2327 posts · Server mstdn.social
🦌🦌🦌 🎅🏽 abejaclaustro 🎄 · @abejaclaustro
134 followers · 340 posts · Server mastodon.lol4/ this latest episode of extreme #caregiving involved all three of us getting sick. whether it was a cold or covid, i don't know. none of us tested positive, but all of us were headachy & sniffly for a week.
for my dad with #ParkinsonsDisease, #dementia, urinary & fecal #incontinence, & my mother with #CVD, #CHF, #COPD, #MGUS, #dementia, #ThyroidDisease, severe #osteoporosis, #KidneyDisease, #raynauds, etc... having even just a cold makes everything worse.
#caregiving #parkinsonsdisease #dementia #incontinence #cvd #chf #copd #thyroiddisease #osteoporosis #KidneyDisease #raynauds #mgus
Yann Nguyen · @ynguyen
11 followers · 22 posts · Server med-mastodon.com
RT @gurdeep_dulay@twitter.com
Predictive features for #SystemicSclerosis
➡️#Raynauds with abnormal nailfold capillaroscopy and #Ssc antibodies = 66% transition to #Scleroderma in 5 years
https://doi.org/10.1016/S0140-6736(22)01692-0
🐦🔗: https://twitter.com/gurdeep_dulay/status/1599316753921630208
#systemicsclerosis #raynauds #SSC #scleroderma
~Erin~ · @Erin
28 followers · 113 posts · Server halifaxsocial.caSurprisingly I was able to e-file my nails without hitting my eroded sidewalls. #raynauds #bergers #constantpain
Yep, I'm making my own hashtags. Go me.
#raynauds #bergers #constantpain