I've had to create an "as needed" medication-but can't backdate events, log intensity waking/sleeping or duration. Back to the old google sheet it is, then. Goal: get the Lamotrogine dose to one where sleeping focal point #seizures go away -if I can completely eliminate those then I will take that as the cue that waking events are gone too.
New publication from our group finding that loss of normal PSEN2 function markedly changes the anticonvulsant activity of mechanistically diverse antiseizure medicines. Personalized treatment strategies in #alzheimers disease to control focal #seizures may be an attractive disease-modifying solution to improve long term outcomes. https://www.frontiersin.org/articles/10.3389/fneur.2023.1223472/abstract
This is my second time making an #introduction post on Mastodon.
I'm basically a geeky disabled #trans woman (she/her).
I'm a fan of electronic music, especially #industrial and #synthpop. I really love #StarTrek :TransDelta:. I've started to have an interest in manga and anime. And I have a calculator collection.
I deal with multiple chronic conditions, including #ADHD, #AnkylosingSpondylitis, #RheumatoidArthritis, #seizures, and #migraine.
Most importantly, I love cats and have 4 of them.
#introduction #trans #industrial #synthpop #startrek #adhd #AnkylosingSpondylitis #RheumatoidArthritis #seizures #migraine
You might wonder what the big deal is.
Flashing lights at that cadence can definitely cause #Seizures.
For me, it caused a massive migraine. One that took 10 hours before I could be in normal lighting again. Even today, everything seemed a bit too bright.
#Disabilities are real and scary at time.
#Accessibility can be as simple as not turning on the flashing lights!
#seizures #disabilities #accessibility
Lost over a day to health bs again so we have until 11pm to come up with the remaining $1777 we owe the inn or we’re going to be evicted and end up back on the streets, but with all the cats this time.
#Eviction #LongCovid #Seizures #ChronicallyIll #Emergency #Crisis
#eviction #LongCovid #seizures #chronicallyill #emergency #crisis
Don't give up. It took years but I finally found a neurologist who believed me. Then an EEG finally confirmed that I was having seizures. I've been on Keppra for about 18 months. After about two weeks it had stopped completely.
#seizures #seizuredisorder #spoonie
I’ve used #Astrodon briefly before. I’m returning because #Twitter is now so unsafe for me. I am a #transman, #nonbinary, & #gay former #computational #astrophysicist & #particle physicist
I was in #academia for 15 yrs over 3 MSc’s. Now, I am partly #disabled by #seizures. I work as a #tutor. I aspire to do #datascience
My research was on #blackholes, #gravitationalwaves, #neutrinos, #exoplanets, & #cosmology. I’m hoping to connect to people with similar interests, especially existing friends
#Astrodon #twitter #transman #nonbinary #gay #computational #Astrophysicist #particle #academia #disabled #seizures #tutor #datascience #blackholes #GravitationalWaves #neutrinos #exoplanets #cosmology
I wonder if there is a link between my childhood epilepsy and the intrusive thoughts that emerged around the same time. Not necessarily in a brain damage sort of way, but in a neurotransmitter kinda way.
#epilepsy #seizures #glutamate #gaba #dangercardio
There’s more about my family and our situation on our GFM and our Kofi, and I’m open to respectful questions!
Some people don’t realize (or care) how harmful making assumptions is.
DID on it’s own makes our life very interesting at times, not to mention us both being autistic, chronically ill, non-binary, etc.
It’s not that complicated for those who actually care to listen. 🌸
#Autistic #DID #Fibro #Tics #Seizures #LongCovid #Nonbinary #CultSurvivor #Plurality #CPTSD #Trans #Unhoused #Anxiety
#autistic #did #fibro #tics #seizures #LongCovid #nonbinary #cultsurvivor #plurality #cptsd #trans #unhoused #anxiety
Pain is flaring and I desperately wish I could nap. 😭
Trying to maintain anxiety and panic because it triggers all of our health bs, and I can’t afford seizures right now.
#fibro #painflare #LongCovid #tics #seizures #Migraine #cfs
FYI- #HeatStroke will #kill
How #heat waves can kill and how you can stay #safe | CNN
#health #summer #warm #climate #sick #seizures
https://www.cnn.com/2022/09/06/health/heat-waves-stay-safe/index.html
#seizures #sick #climate #warm #summer #health #safe #heat #kill #heatstroke
Bivalent CoVid Vaccines Safe For Infants and Toddlers:
After administering nearly a quarter million doses, not one case of the cardiac complications myocarditis or pericarditis occurred. #CoVid #bivalentvaccine #moderna #pfizer #myocarditis #seizures
https://youtu.be/lbWxHYTCwoU
#COVID #bivalentvaccine #Moderna #pfizer #myocarditis #seizures
https://holistichealth.one/natural-remedies-for-seizures/ Seizures are way too common now days, for many reasons, mostly environmental toxins like heavy metals, pharmaceuticals, GMO foods and allergies. Also avoiding exposure to harmful electromagnetic frequencies like 5G and EMF. You can prevent your next epileptic seizure by using natural remedies that really work and can even reverse it by using them consistently. They are what the chemical medicines are based off, without the addiction or harmful side effects. #seizures #epilepsy #convulsions #health #remedies
#seizures #epilepsy #convulsions #health #remedies
I've been on #keppra at 750mg twice a day for a long time.
Three weeks ago, we reduced it to 500mg twice a day. My seizures did not come back.
I've just had an appointment with a #neurologist and we're reducing it now to 250mg twice a day, for 3 weeks and then I'm stopping. Of course, that's assuming my #seizures don't come back.
🤞
#BrainBiopsy #cancer #CancerSurvivor #PCNSLymphoma #lymphoma
#keppra #neurologist #seizures #brainbiopsy #cancer #cancersurvivor #pcnslymphoma #lymphoma
Whoa, either that was a very quick wave of dissociation (??) or maybe some sort of partial switch?
Better not be seizure activity, but with these levels of stress, pain, and fatigue, I wouldn’t be surprised. 😓
#NEISvoid #DID #Dissociation #Seizures #Migraine #BrainsAreWeird
#NEISvoid #did #dissociation #seizures #Migraine #brainsareweird
Coronavirus: UK sleepwalking into a chronic illness disaster
https://www.thecanary.co/uk/2023/06/05/coronavirus-uk-unprepared-chronic-illness/
#UKGov
#Covid19
#Covid
#LongCovid
#ChronicIllness
#CardiovascularDisease
#Neurological
#Healthcare
#StaffShortage
#LackOfVigilance
#BrainFog
#Dementia
#Epilepsy
#Seizures
#ukgov #COVID19 #covid #LongCovid #chronicillness #cardiovasculardisease #Neurological #healthcare #staffshortage #LackOfVigilance #brainfog #dementia #epilepsy #seizures
Cortical layering disrupts multi-electrode current steering https://iopscience.iop.org/article/10.1088/1741-2552/acdaf7 "Multi-electrode stimulation is not suitable for targeted activation of layers using current steering", but may reduce risk of #seizures by lowering activation #thresholds; brain implant, #visual cortical #prosthesis, #BCI #NeuroTech #blindness
#blindness #neurotech #bci #prosthesis #visual #thresholds #seizures
I was thinking about going to a 7-day retreat at my #Zen center, a few states away from where I live.
I also also thinking about how I'd present this to Pretty Impala, seeing as our relationship is just starting.
Then I remembered that I'm tapering off the keppra that keeps my seizures at bay. If I were to have a seizure while #driving or at the Zen center I'd be in deep #shit because most states want you off the road when you have #seizures.
No seizures so far. 👍
#zen #driving #shit #seizures #zenbuddhism #meditation
Thank you so much, everyone! 💗
We're now $355 from making rent today & avoiding trouble with the owners, can we raise this in the next 2 hours 30 minutes while our safe person is still in the office?? 🥺
If so, then I can hopefully raise enough for groceries because we're literally out of everything, and are painfully hungry...
Please boost to help these queers & kitties stay off the streets! 🙏🏻
#Boost #MutualAid #Hungry #Scared #Shelter #CPTSD #LongCovid #Fibro #Seizures
#boost #MutualAid #hungry #scared #shelter #cptsd #LongCovid #fibro #seizures