That was a night to forget...

#RettSyndrome #disability #SeizuresSuck #SleepDeprivation

A has just had a focal seizure I think. She's sleeping it off now. They're getting harder to spot now. Perhaps they're milder? She's titrated up onto a new med - maybe this is why 🤷 Who knows. The wonderful world of epilepsy where you feel mostly like it's guesswork and knowing your child so well, you spot the tiniest sign #SeizuresSuck