#MyalgicEncephalomyelitis #MECFS #MedEd #MedicalEducation #MedMastodon #pwME #severeME

[Automatic repost https://twitter.com/dystobot/status/1654742933298348036]

RT @cherylbenson: @MercedesGlobal I haven’t had a doctor since 2004 with 3 massive stroke and 3 Dystonic brain injuries and #SevereME and #LongCovid Good luck to him! What I found that doctors don’t want complicated cases I hope this his is easy #savingcheryl

[Automatic repost https://twitter.com/dystobot/status/1645822822000852993]

RT @cherylbenson: My right lung ruined by #Covid though I need these tests for the extensive damage from 3 #strokes and 3 #dystonic ABI’s as I have had no
medical care or rehab because malpractice and collusion. Barely holding on #savingcheryl #LongCovid #severeME https://t.co/JtTwUoMKG0

[Automatic repost https://twitter.com/dystobot/status/1634181104801308672]

RT @cherylbenson: @CBCQueensPark I have no GP since 2004 with #severeME, 3 strokes, Dystonia and seizure disorder now severe Mold Illness

[Automatic repost https://twitter.com/dystobot/status/1634179847445442562]

RT @cherylbenson: I have no GP since 2004 with #severeME, 3 strokes, Dystonia and seizure disorder now severe Mold Illness

[Automatic repost https://twitter.com/dystobot/status/1632643464713105409]

RT @cherylbenson: Pouring money into a health care system that doesn’t work and Premiers that hide billions of federal money given for healthcare isn’t going to do much, will it. I have no doctor since 2004 with 3 massive strokes and 3 severe Dystonic brain injuries and #severeMe with mould… https://t.co/ac0IJLe0rL

RT @katie_andME
It’s #InternationalWheelchairDay and my message is please give #pwME #severeME the wheelchairs they need early enough they can use them and not get worse. I finally have a good wheelchair, I can’t stand or walk but I’m not well enough to use the wheelchair I waited years for.

[Automatic repost https://twitter.com/dystobot/status/1625516500579762177]

RT @cherylbenson: No GP since 2004 with #SevereME, 3 massive strokes, 3 severe Dystonic #ABI seizure disorder and tardive Generalised Dystonia #sjorens #POTS #moldIllness #mcs
MECFS #savingcheryl #topoli https://t.co/uaDrpL0HCV

[Automatic repost https://twitter.com/dystobot/status/1623344692434804736]

RT @cherylbenson: What healthcare? I’ve had no GP since 2004 with 3 massive strokes and 3 Dystonic #ABIs. #SevereME 32 years now #LongCovid because malpractice, negligence

[Automatic repost https://twitter.com/dystobot/status/1613577896022384640]

RT @cherylbenson: @Qualifyfor @home_lorrie @Mikeggibbs they missed two of my strokes they didn’t know what Dystonia was a Dysarthria or #severeme and I’ve been abused physically abused and verbally by almost all of them they know shit and discriminate against disabled ongoing

[Automatic repost https://twitter.com/dystobot/status/1612442868513230848]

RT @cherylbenson: I not had government homecare since 2006 I only got 4 hours a week with #SevereME 2 strokes and 3 Dystonic #ABI’s I was left in my own urine bedconfined with only 4 bedbaths in 6 months, disability abuse ongoing, theft. they protect the abusers #CCAC #COTA #savingcheryl https://t.co/xSj0e0f03x

@tgent_fens Completely agree mental health issues are important and it's vital that mental well-being is supported.
The issue comes with when CBT is a blanket approach or the only therapeutic option. Apps aren't generally popular in the community as they are often mixed with a BPS model.
In #severeME CBT has been shown to be harmful to some and apps aren't accessible to all.
Ideally we'd have specialist nurses (like Parkinson's Nurses) that can deal with mental, social and occupational health.