I hereby petition to change the #RareDiseaseDay mascot from a zebra 🦓 to a unicorn. 🦄 But happy day to those of us who are rare! Keep defying odds and educating medical providers! #ShowYourStripes #ShareYourColors #ShareYourColours #SMA #ChronicIllness #Disability

DID YOU KNOW?
🔹️25 million people suffer from PH in 🌎?
🔹️3 in 4 pts have advanced dz by the time of dx
🔹️cost of therapies $100k/yr
#phaware #RareDiseaseDay #ShowYourStripes #ShareYourColours
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RT @PHAssociation
More than 25 million people in the U.S. and 300 million people worldwide are impacted by a rare disease. #Pulmonaryhypertension is often associated with other #rarediseases such as #scleroderma, #HHT, idiopathic #pulmonary…
https://twitter.com/PHAssociation/status/1630572366739718146

RT @eurordis@twitter.com

Equity. 🌍

Share this year’s @rarediseaseday@twitter.com video to let people know that you are supporting the rare disease community this year and inspire them to do the same!

#RareDiseaseDay #LightUpForRare #ShareYourColours

🐦🔗: https://twitter.com/eurordis/status/1594314708198244353