Domando Al Lobo · @DomandoAlLobo
70 followers · 742 posts · Server mastodon.social

El síndrome de puede afectar a la vida y de las . Rara vez se pregunta a las y, sobretodo al principio, ellas no lo relacionan con la enfermedad
Es importante tocar el tema en consulta y derivar a si es necesario.

(🖌Hao Hao Project)

#sjogren #saludsexual #mujeres #pacientes #tabu #ginecologia #autoinmunes #sjogrens #sexualidad

Last updated 2 years ago

Domando Al Lobo · @DomandoAlLobo
68 followers · 727 posts · Server mastodon.social

es el Día Europeo de la .

El síndrome de es una que se banaliza como "molestia" por sequedad de ojos y boca. Pero ataca a las mucosas (pulmones...): puede provocar sequedad vaginal y diversos problemas derivados de ello (infecciones, dolor, atrofia vaginal...) que han de tratarse.

#272 Sequedad vaginal en domandoallobo.blogspot.com/201 ( E. Loli)

#14defebrero #sanvalentin #saludsexual #sjogren #enfermedadautoinmune #sjogrens #pacientesquecuentan #autoinmunes #sexualidad #mujer

Last updated 2 years ago

Simon Allison · @sigo
80 followers · 62 posts · Server techhub.social

🙄everyday its like this ..

RT @LunaRivera96@twitter.com

Brain fog feels like....

🐦🔗: twitter.com/LunaRivera96/statu

#brainfog #sle #lupus #fibromyalgia #sjogrens

Last updated 2 years ago

Wonderdog · @caity
529 followers · 612 posts · Server bne.social

@Wolfie_Rankin, I don’t chew gum (even though it’s recommended for patients to help with mouth dryness) for several reasons
- I have issues
- I don’t like overly sweet things (the sugar free stuff is vile!)
- My Nana always told me chewing gum was unladylike, and made people look like cows chewing their cud.

My partner likes chewing gum. I have no issue with them liking it.

#sjogrens #tmj

Last updated 2 years ago

Wonderdog · @caity
522 followers · 501 posts · Server bne.social

Lovely partner made an early run to the chemist this morning, so I’m now equipped with medication to help my upset tummy (seems to be helping) and yet another type of prescription eyedrops (oil based, this time, to be used in conjunction with the allergy drops and water based drops.)

So after a bad night last night,@today should be more comfortable. Phew!

#sjogrens #dryeyes

Last updated 2 years ago

Domando Al Lobo · @DomandoAlLobo
32 followers · 257 posts · Server mastodon.social
B Thoreau · @Thoreau
206 followers · 915 posts · Server mas.to

Produce more tears every day. Literally, just let me cry.

#sjogrens #oddnewyearsresolutions

Last updated 2 years ago

LadyWillow · @LadyWillow
40 followers · 242 posts · Server mastodonbooks.net

@batteredoldbook @80 yrs old. THIS: Listen to the Body - learn the Language & -GMO, , ; w/Baby Steps. /;)

#fm #sjogrens #ebv #adrenalinsufficiency #gf #non #organic #filteredwater

Last updated 2 years ago

B Thoreau · @Thoreau
200 followers · 904 posts · Server mas.to
Domando Al Lobo · @DomandoAlLobo
26 followers · 190 posts · Server mastodon.social

¿Quién me ha robado la ?
Spoiler: mis enfermedades. Principalmente la .
...

Leer mi blog desde el principio es ver cómo ha envolucionado mi mi cuerpo y mi vida a través de los años.
¿Cuántas veces se puede morir y renacer en una misma vida?

#5 🐺 domandoallobo.blogspot.com/201

#navidad #encefalomielitismialgica #lupus #sjogrens #pots #fibromialgia #migranas #autoinmunes #blog #christmas

Last updated 2 years ago

Bookeater · @Bookeater
34 followers · 266 posts · Server mastodon.social

May I say that finally buying some Burt's bees on an impulse was totally worth it? I've got chapped lips very easily (thanks ) and they're definitely richer and less heavy than the labello white I was using, I don't feel as if I were putting fat on my mouth. Also, the peppermint one (the regular one of the four in the pack) is a surprise - pleasant but not overpowering.

Gotta tell mum about it, her lips are in worse shape than mine.

#sjogrens

Last updated 2 years ago

Wonderdog · @Wonderdog
442 followers · 2421 posts · Server aus.social

@ameliahanslow , but swollen itchy eyes for weeks. The optometrist prescribed Patanol (olapatadine) eyedrops which have helped, in conjunction with my usual every couple of hours HyloForte drops, which help wash out and soothe dry eyes (I also have ).

#queensland #sjogrens

Last updated 2 years ago

Wonderdog · @Wonderdog
398 followers · 1937 posts · Server aus.social

Right, time to put the 3rd kind of eye drops in my eyes, and start the evening audiobook running. And then it's just my ordinary eye drops as I wake during the night.

Allergy season will pass soon.

Night all!

#itchy #allergyeyes #eyes #eyedrops #sjogrens

Last updated 2 years ago

Domando Al Lobo ✅ · @DomandoAlLobo
12 followers · 101 posts · Server mastodon.social

12 de diciembre, .
Horrible la sensación de perder durante un rato algo tan automático como tragar saliva.
Ya no me asusto y sé qué hacer. Aunque también me ahogo con mi propia saliva :blobsweats: Gracias 🫡

La en el síndrome de puede dificultar tomar medicación, tragar sólidos...
Este vídeo del Hospital Virgen del Rocío da algunas recomendaciones aunque en ocasiones se necesitan profesionales de la que te ayuden.

#diamundialdisfagia #sjogrens #disfagia #sjogren #salud

Last updated 2 years ago

Domando Al Lobo ✅ · @DomandoAlLobo
12 followers · 100 posts · Server mastodon.social

12 de diciembre, .
Es un trastorno de la deglución (problemas para tragar líquidos, alimentos... incluso saliva). Según su origen, gravedad... necesita distinta intervención multidisciplinar.
Tengo síndrome de y he tenido temporadas muy malas. Ahora sé manejarla mejor. Ésta es mi experiencia.

#79 Comulgar con ruedas de molino... al tomar pastillas
🐺 domandoallobo.blogspot.com/201
en

#diamundialdisfagia #sjogren #disfagia #sjogrens

Last updated 2 years ago

Julie Courtwright · @Jubbacca
26 followers · 90 posts · Server mindly.social

You know you have when you always have a tiny $20 bottle of eyedrops in your pocket and think nothing of applying them mid conversation.

#sjogrens

Last updated 2 years ago

Wonderdog · @Wonderdog
392 followers · 1858 posts · Server aus.social

@bhflowers that’s a good Idea! I have , which means my eyes are always very dry, and I usually manage it with eye drops throughout the day. A small humidifier might be the ticket, though.

#sjogrens #dryeyes

Last updated 2 years ago

Wonderdog · @Wonderdog
368 followers · 1599 posts · Server aus.social

Woke up today with my nearly swollen shut from .
(Hoping allergies. says most likely allergies, given recent , , bloody , and not a sudden reaction to the eye drops I need at least 8 times a day because of )

#eyes #allergies #occamsrazor #rain #mowing #privet #sjogrens #ouch

Last updated 2 years ago

Wonderdog · @Wonderdog
366 followers · 1544 posts · Server aus.social

Well, time to wash the day’s multiple applications of eye drops off my eyelashes, and go to bed.

Night all!

#sjogrens #lowvision #eyes #eyedrops

Last updated 2 years ago

My father has Diverticulitis, Sjogren's syndrome, and Myasthenia gravis. His specialists have told him he could die from any one of these diseases at any time.

#sjogrens #myastheniagravis #diverticulitis #health #olderparents

Last updated 2 years ago