UK Government Work Capability Assessment: Activities & Descriptors Open Consultation
The government is seeking views on changing the questions on the WCA "so that assessments reflect greater flexibility and availability of reasonable adjustments in work, particularly home working..." & "The application of Risk to Self or Others..." Closing date for responses October 30
#chronicillness @chronicillness #spoonies @spoonies #mecfs #disability #disabled
#chronicillness #spoonies #mecfs #disability #disabled
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"There are so many ways that an #illness or #disability can fluctuate, so many ways that the effects of such can change. But when you do have a #fluctuatingillness or disability, it often comes with many of the same pitfalls of a #hiddendisability. Judgement from those uneducated in the realities of disability, high expectations that are realistically beyond your capabilities, assumptions from others."
#chroniclife #hiddenillness #invisibleillness #Spoonies
#Spoonie #ChronicallyIll #MEcfs
#illness #disability #fluctuatingillness #hiddendisability #chroniclife #hiddenillness #InvisibleIllness #spoonies #spoonie #chronicallyill #mecfs
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@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #Spoonie #Spoonielife #Spoonies @spoonies #chronicillness @chronicillness
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #spoonie #spoonielife #spoonies #chronicillness
Chronic illness dress code guide
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#illnesshumour #illnesshumor #chronicillness @chronicillness @spoonies #chroniclife #Spoonielife #ChronicIllnesses
#Spoonies #Spoonie #ChronicallyIll @mecfs
#MEcfs #CFS #PwME
#illnesshumour #illnesshumor #chronicillness #chroniclife #spoonielife #ChronicIllnesses #spoonies #spoonie #chronicallyill #mecfs #cfs #pwme
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#Spoonie #Spoonielife #Spoonies @spoonies #chronicillness @chronicillness
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
#spoonie #spoonielife #spoonies #chronicillness #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice
It occurred to me last night, at 15% functioning I also only get to be myself 15% of the time. The rest of the time I am a bewildered meatsack.
#chronicillness #spoonies #spoonielife
Well here's an interesting thing I learned about myself this summer:
When I feel gross with a kind of vague headache and I can't figure out what's wrong... I've let myself get too hot.
The heat sickness creeps up on ya, I am still trying to catch the early signs.
What other signs have my fellow #spoonies noticed? (pls share tips for cooling down fast too!)
Have you tried this method (or something similar)?
A written description of the method:
https://www.strugglecare.com/shop
“How to use your Room Reset Boards!” in a video format
#actuallyautistic #Autism #adhd #AuDHD #spoonies
This has been the worst week for chronic pain and it’s MONDAY. I missed church. I missed our church discussion group. I couldn’t go grocery shopping and I cried after my shower.
My fellow #spoonies never let anyone say the pain is all in your head or that it can be prayed away.
#chronicpain #spoonie #disability
#disability #spoonie #chronicpain #spoonies
@Lacci Hope you got some useful info from your Dr Dad. I'm happy to also do a shout out to see who else has been noodling with #NSAIDs and may have ideas on rebound pain and other pain management ideas.
(If yer reading this toot, more info up the thread☝️)
#nsaids #chronicpain #chronicillness #spoonies
Ever felt empty, creative? Like you're just wrung out?
I have, often. Chronic illness really does that - but I've learned a way to keep moving forward. Maybe it can help you. #CreateIt22
#WritingCommunity #writerslife #writer #artistsofmastodon #creatives #writersofmastodon #artist #chronicillness #spoonies
#createit22 #writingcommunity #writerslife #writer #artistsofmastodon #creatives #writersofmastodon #artist #chronicillness #spoonies
I’m backkkkkk
+ with a much shorter haircut 💇🏼♀️ 🙈
#mentalhealth #mentalillness #madtodon #MadTwitter #disabled #disability #bpd #BPDfam #twitterdown
#introductions #introduction #intro #twittermigration #twittermigrant #mentalhealthawareness #MentalHealthSupport #chronicillness #fibromyalgia #spoonie #spoonies #chronicpain #sicknotweak #itsoknottobeok #itsokaytonotbeokay
#itsokaytonotbeokay #itsoknottobeok #sicknotweak #chronicpain #spoonies #spoonie #fibromyalgia #chronicillness #MentalHealthSupport #mentalhealthawareness #twittermigrant #twittermigration #intro #introduction #introductions #twitterdown #BPDfam #bpd #disability #disabled #madtwitter #madtodon #mentalillness #mentalhealth
I wish some companies would keep some options for quarantine activities for us #spoonies . Concert online with a chat for concert goers (yes please) haunted tours online (please and thank you) I just want to do social outings too! #disabilityawareness
#spoonies #disabilityawareness
Some hashtags related to me and my family, so you can know a bit about us if you want to help us 💖
#Anarchy #Anarchist #Unhoused #Homeless #CPTSD #Disabled #CultSurvivors #Pagan #Witch #EnergyWork #Queer #Trans #NonBinary #ChosenFamily #Autistic #ActuallyAutistic #QueerCouple #Cats #CatsOfMastodon #LongCovid #ChronicallyIll #ChronicPain #Cfs #MutualAid #Crowdfunding #Spoonies #EDRecovery #DID #OSDD #Plural #PluralGang #PolyfragmentedDID #Amnesia
#anarchy #Anarchist #unhoused #homeless #cptsd #disabled #CultSurvivors #pagan #witch #energywork #queer #trans #nonbinary #chosenfamily #autistic #actuallyautistic #QueerCouple #cats #catsofmastodon #LongCovid #chronicallyill #chronicpain #cfs #MutualAid #crowdfunding #spoonies #edrecovery #did #osdd #plural #pluralgang #PolyfragmentedDID #amnesia
Mast Cell and Histamine Safe Forms of Magnesium: What to Know When You Have Mast Cell Activation Syndrome or Histamine Intolerance via Mast Cell 360
#MCD #MCAS #MCAD #MastCell #MastCells #Mastocytosis #EDS #hEDS #HSD #Fibro #Fibromyalgia #allergy #allergies #MedEd #NEISvoid #spoonies #MCS
#mcd #mcas #MCAD #mastcell #mastcells #Mastocytosis #eds #heds #HSD #fibro #fibromyalgia #allergy #allergies #MedEd #NEISvoid #spoonies #MCS
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May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help by retooting this video
(9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/#ChronicFatigueSyndrome" https://vimeo.com/338532785 "The best thing I’ve ever done: Filmmaker with ME wants to raise awareness of hidden illness" https://www.swlondoner.co.uk/this-is-me-filmmaker-josh-pickup/
#MEcfs #CFS #MyalgicE #Spoonies #Spoonie #SpoonTheory #PwME #MEeps #CFSME #CFIDS @spoonies @mecfs @cfs
#myalgicencephalomyelitis #mecfs #cfs #myalgice #spoonies #spoonie #spoontheory #pwme #meeps #cfsme #cfids
🧵
Powerful piece of writing about living with an energy-limiting #chronicillness [in her case, #MyalgicEncephalomyelitis]
Essay: 'To the Wastelands' by @GearoidinC
https://www.anniejournal.com/wastelands-geraldine-mccarthy
“No hero’s journey is ever written about the person who just stayed home. Maybe it’s time for that to change” (Nina @VerloreneZeit Jul 11)
#spoonie #ELCI #PwME #MEcfs #pwme #cfsme #spoonies @spoonies @chronicillness #ChronicFatigueSyndrome
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#chronicillness #MyalgicEncephalomyelitis #spoonie #ELCI #pwme #mecfs #cfsme #spoonies #chronicfatiguesyndrome
Don't follow the Spoon Theory blindly it might even cause you harm.
Why ?
The theory states that you have a limited number of spoons available for the day and each action will cost a given number of spoons.
But for those living with chronic pain and fatigue, this theory does not fit their lives as there is no set amount they wake up with and going over their energy reserves on Monday will take away from Tuesday
More about this theory at :
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Sadly witnessing #ableism in action more and more in the past couple years.
If you are working at a company that needs to learn how to be more #inclusive, understand proper language to use when discussing disabilities, what do #ableism, #accessibility, and other key phrases mean and how should those be considered in the workplace etc, consider programs like this one run by Access Living - https://www.accessliving.org/our-services/consulting-training/
#societyandculture #socialissues #team #eventmanagement #language #spoonies
#spoonies #language #EventManagement #team #socialissues #societyandculture #accessibility #inclusive #ableism