Tom Kindlon · @tomkindlon
777 followers · 2062 posts · Server disabled.socialUK Government Work Capability Assessment: Activities & Descriptors Open Consultation
The government is seeking views on changing the questions on the WCA "so that assessments reflect greater flexibility and availability of reasonable adjustments in work, particularly home working..." & "The application of Risk to Self or Others..." Closing date for responses October 30
#chronicillness @chronicillness #spoonies @spoonies #mecfs #disability #disabled
#chronicillness #spoonies #mecfs #disability #disabled
Tom Kindlon · @tomkindlon
777 followers · 2038 posts · Server disabled.social2/
"There are so many ways that an #illness or #disability can fluctuate, so many ways that the effects of such can change. But when you do have a #fluctuatingillness or disability, it often comes with many of the same pitfalls of a #hiddendisability. Judgement from those uneducated in the realities of disability, high expectations that are realistically beyond your capabilities, assumptions from others."
#chroniclife #hiddenillness #invisibleillness #Spoonies
#Spoonie #ChronicallyIll #MEcfs
#illness #disability #fluctuatingillness #hiddendisability #chroniclife #hiddenillness #InvisibleIllness #spoonies #spoonie #chronicallyill #mecfs
Tom Kindlon · @tomkindlon
774 followers · 2029 posts · Server disabled.social
Shared with permission
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #Spoonie #Spoonielife #Spoonies @spoonies #chronicillness @chronicillness
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #spoonie #spoonielife #spoonies #chronicillness
Tom Kindlon · @tomkindlon
773 followers · 2007 posts · Server disabled.social
Chronic illness dress code guide
Shared with permission
#illnesshumour #illnesshumor #chronicillness @chronicillness @spoonies #chroniclife #Spoonielife #ChronicIllnesses
#Spoonies #Spoonie #ChronicallyIll @mecfs
#MEcfs #CFS #PwME
#illnesshumour #illnesshumor #chronicillness #chroniclife #spoonielife #ChronicIllnesses #spoonies #spoonie #chronicallyill #mecfs #cfs #pwme
Tom Kindlon · @tomkindlon
750 followers · 1919 posts · Server disabled.social
Shared with permission
#Spoonie #Spoonielife #Spoonies @spoonies #chronicillness @chronicillness
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
#spoonie #spoonielife #spoonies #chronicillness #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice
Valerie Roney · @vlrny
1551 followers · 5534 posts · Server disabled.socialIt occurred to me last night, at 15% functioning I also only get to be myself 15% of the time. The rest of the time I am a bewildered meatsack.
#chronicillness #spoonies #spoonielife
Valerie Roney · @vlrny
1548 followers · 5497 posts · Server disabled.socialWell here's an interesting thing I learned about myself this summer:
When I feel gross with a kind of vague headache and I can't figure out what's wrong... I've let myself get too hot.
The heat sickness creeps up on ya, I am still trying to catch the early signs.
What other signs have my fellow #spoonies noticed? (pls share tips for cooling down fast too!)
Adeline Jérôme ♾️ 🇲🇫 🇨🇦 · @adelinej
508 followers · 1915 posts · Server thecanadian.socialHave you tried this method (or something similar)?
A written description of the method:
https://www.strugglecare.com/shop
“How to use your Room Reset Boards!” in a video format
#actuallyautistic #Autism #adhd #AuDHD #spoonies
Sarah · @shoesforall
52 followers · 387 posts · Server romancelandia.clubThis has been the worst week for chronic pain and it’s MONDAY. I missed church. I missed our church discussion group. I couldn’t go grocery shopping and I cried after my shower.
My fellow #spoonies never let anyone say the pain is all in your head or that it can be prayed away.
#chronicpain #spoonie #disability
#disability #spoonie #chronicpain #spoonies
Valerie Roney · @vlrny
1493 followers · 5128 posts · Server disabled.social@Lacci Hope you got some useful info from your Dr Dad. I'm happy to also do a shout out to see who else has been noodling with #NSAIDs and may have ideas on rebound pain and other pain management ideas.
(If yer reading this toot, more info up the thread☝️)
#nsaids #chronicpain #chronicillness #spoonies
Ruthanne · @ruthannereid
454 followers · 1187 posts · Server creativewriting.socialEver felt empty, creative? Like you're just wrung out?
I have, often. Chronic illness really does that - but I've learned a way to keep moving forward. Maybe it can help you. #CreateIt22
#WritingCommunity #writerslife #writer #artistsofmastodon #creatives #writersofmastodon #artist #chronicillness #spoonies
#createit22 #writingcommunity #writerslife #writer #artistsofmastodon #creatives #writersofmastodon #artist #chronicillness #spoonies
🦋Mentally Millennial💅🏻 · @millennialmh
293 followers · 167 posts · Server mas.to
I’m backkkkkk
+ with a much shorter haircut 💇🏼♀️ 🙈
#mentalhealth #mentalillness #madtodon #MadTwitter #disabled #disability #bpd #BPDfam #twitterdown
#introductions #introduction #intro #twittermigration #twittermigrant #mentalhealthawareness #MentalHealthSupport #chronicillness #fibromyalgia #spoonie #spoonies #chronicpain #sicknotweak #itsoknottobeok #itsokaytonotbeokay
#itsokaytonotbeokay #itsoknottobeok #sicknotweak #chronicpain #spoonies #spoonie #fibromyalgia #chronicillness #MentalHealthSupport #mentalhealthawareness #twittermigrant #twittermigration #intro #introduction #introductions #twitterdown #BPDfam #bpd #disability #disabled #madtwitter #madtodon #mentalillness #mentalhealth
Tea 🥄🖤🐘🤍♾️ · @Tii
99 followers · 491 posts · Server aus.socialI wish some companies would keep some options for quarantine activities for us #spoonies . Concert online with a chat for concert goers (yes please) haunted tours online (please and thank you) I just want to do social outings too! #disabilityawareness
#spoonies #disabilityawareness
Struggling - Pls stand by 😰 · @Hare
197 followers · 2473 posts · Server kolektiva.social
Some hashtags related to me and my family, so you can know a bit about us if you want to help us 💖
#Anarchy #Anarchist #Unhoused #Homeless #CPTSD #Disabled #CultSurvivors #Pagan #Witch #EnergyWork #Queer #Trans #NonBinary #ChosenFamily #Autistic #ActuallyAutistic #QueerCouple #Cats #CatsOfMastodon #LongCovid #ChronicallyIll #ChronicPain #Cfs #MutualAid #Crowdfunding #Spoonies #EDRecovery #DID #OSDD #Plural #PluralGang #PolyfragmentedDID #Amnesia
#anarchy #Anarchist #unhoused #homeless #cptsd #disabled #CultSurvivors #pagan #witch #energywork #queer #trans #nonbinary #chosenfamily #autistic #actuallyautistic #QueerCouple #cats #catsofmastodon #LongCovid #chronicallyill #chronicpain #cfs #MutualAid #crowdfunding #spoonies #edrecovery #did #osdd #plural #pluralgang #PolyfragmentedDID #amnesia
OhTWIST · @ohtwist
125 followers · 175 posts · Server disabled.socialMast Cell and Histamine Safe Forms of Magnesium: What to Know When You Have Mast Cell Activation Syndrome or Histamine Intolerance via Mast Cell 360
#MCD #MCAS #MCAD #MastCell #MastCells #Mastocytosis #EDS #hEDS #HSD #Fibro #Fibromyalgia #allergy #allergies #MedEd #NEISvoid #spoonies #MCS
#mcd #mcas #MCAD #mastcell #mastcells #Mastocytosis #eds #heds #HSD #fibro #fibromyalgia #allergy #allergies #MedEd #NEISvoid #spoonies #MCS
OhTWIST · @ohtwist
125 followers · 172 posts · Server disabled.social
Irish ME/CFS Association · @IrishMECFSAssociation
131 followers · 905 posts · Server mastodon.ie3/
May is #MyalgicEncephalomyelitis (ME) Awareness Month.
You can help by retooting this video
(9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/#ChronicFatigueSyndrome" https://vimeo.com/338532785 "The best thing I’ve ever done: Filmmaker with ME wants to raise awareness of hidden illness" https://www.swlondoner.co.uk/this-is-me-filmmaker-josh-pickup/
#MEcfs #CFS #MyalgicE #Spoonies #Spoonie #SpoonTheory #PwME #MEeps #CFSME #CFIDS @spoonies @mecfs @cfs
#myalgicencephalomyelitis #mecfs #cfs #myalgice #spoonies #spoonie #spoontheory #pwme #meeps #cfsme #cfids
Tom Kindlon · @tomkindlon
574 followers · 965 posts · Server disabled.social🧵
Powerful piece of writing about living with an energy-limiting #chronicillness [in her case, #MyalgicEncephalomyelitis]
Essay: 'To the Wastelands' by @GearoidinC
https://www.anniejournal.com/wastelands-geraldine-mccarthy
“No hero’s journey is ever written about the person who just stayed home. Maybe it’s time for that to change” (Nina @VerloreneZeit Jul 11)
#spoonie #ELCI #PwME #MEcfs #pwme #cfsme #spoonies @spoonies @chronicillness #ChronicFatigueSyndrome
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#chronicillness #MyalgicEncephalomyelitis #spoonie #ELCI #pwme #mecfs #cfsme #spoonies #chronicfatiguesyndrome
Mr. A. · @avds2708_1
24 followers · 246 posts · Server social.vivaldi.netDon't follow the Spoon Theory blindly it might even cause you harm.
Why ?
The theory states that you have a limited number of spoons available for the day and each action will cost a given number of spoons.
But for those living with chronic pain and fatigue, this theory does not fit their lives as there is no set amount they wake up with and going over their energy reserves on Monday will take away from Tuesday
More about this theory at :
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Bonnie Bogovich · @BlackCatBonifide
78 followers · 79 posts · Server mas.toSadly witnessing #ableism in action more and more in the past couple years.
If you are working at a company that needs to learn how to be more #inclusive, understand proper language to use when discussing disabilities, what do #ableism, #accessibility, and other key phrases mean and how should those be considered in the workplace etc, consider programs like this one run by Access Living - https://www.accessliving.org/our-services/consulting-training/
#societyandculture #socialissues #team #eventmanagement #language #spoonies
#spoonies #language #EventManagement #team #socialissues #societyandculture #accessibility #inclusive #ableism