Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social

3/

“As one Canadian in a support group explained many years ago: “I see myself as a different sort of person now and whereas in my life I’d always been, I was always a human doing. And now I’m a human being and that's the only way I can describe it.” Another noted: "You have to find some other way to define yourself that isn’t dependent on your ability to produce."

#spoonie #spoonies #spoonielife #spooniesupport #mecfs #cfs #pwmes #pwme

Last updated 2 years ago

Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social

21/

“It is helpful when you can help take care of my physical needs, so that I can focus on meeting my emotional needs. For example, when you offer to drive or do the dishes, you just saved several of my spoons so I can use them elsewhere in my day. My spoons are my lifeline. Please support me in how I use them”

@spoonies

#spoonie #spoonies #spoonielife #spooniethings #spooniesupport #chronicillness #chronicallyill

Last updated 2 years ago

Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social

20/
“My Spoons Are Precious/Honor How I Use Them

Spoon theory is a metaphor used to describe the amount of mental or physical energy a person has available for daily activities and tasks. A spoon represents a unit of energy allocated to each exertion. I must use each spoon (unit of energy) wisely so that I don’t run out before the end of the day”

@spoonies

#spoonie #spoonies #spooniechat #spoonielife #spooniesupport #spooniecommunity #chronicillness

Last updated 2 years ago

donkey jess · @adonkumentary
48 followers · 113 posts · Server ohai.social

There's a lot to unpack here, but I share bc at the end of it all, we need each other. I hope that the brings back understanding, listening, support, & love.

My latest might be a rough read, so if you've had close encounters in ERs or traumatic hospital experiences.
👇

adonkumentary.com/2023/01/03/t

I love you, I love you, I love you.


#newyear #community #blog #triggerwarning #chronicillness #spoonie #womenshealth #newblogpost #amwriting #spoonielife #spooniesupport #chronicallyill

Last updated 2 years ago