"What we need is a #PublicPrivatePartnership approach, because the current drug development model does not work in the case of #UltraRareDiseases"
➡️See Nick Sireau's full interview:
https://www.youtube.com/watch?v=RKzwBmUYKF4
➡️Read the full article about overcoming challenges in #PatientEngagement in the #RareDiseaseCommunity: https://medipace.com/2023/02/28/raredisease-community/
#publicprivatepartnership #ultrararediseases #PatientEngagement #rarediseasecommunity #rarediseaseday
Creating drugs for
Ultrarare diseases
Is the hard part now
#science #drugs #ultrararediseases #haiku #poetry
https://www.nytimes.com/2022/12/19/health/rare-disease-genetic-treatments.html
#ultrararediseases #drugs #haiku #science #poetry