Retrööt Dr Peter Beaver @PeterJBeaver:
"SARS-2 Autoimmune Risk

#MS 266%
#Pemphigoid 239%
Anti-phospholipid antibody SD 212%
Immune mediated #thrombocytopenia 210%
Pernicious #anaemia 172%
#Vasculitis 146%
Other #arthritis 143%
#Psoriasis 142%
#Spondyloarthritis 132%
Graves D 130%
Rheumatoid arthritis 129%

Lancet, 16.08.23"
#Covid19 #MassDisablingEvent #CovidIsNotOver

''#Necropsy consistently revealed pulmonary #congestion and #oedema, and cerebrocortical malacia with #haemorrhage was also seen in the cat that survived for 10 days. On #histology, all cats had necrotizing #encephalitis and interstitial #pneumonia with pulmonary congestion, oedema, #vasculitis and vascular #thrombosis. One cat also had microscopic multifocal necrosis in the #liver, #pancreas and an adrenal gland.''

“Compared with non-COVID controls, patients with #COVID19 presented an increased risk of developing pernicious anaemia; spondyloarthritis; other autoimmune arthritis; #psoriasis; #pemphigoid; #Graves' disease; anti-phospholipid antibody syndrome; immune mediated #thrombocytopenia; #MultipleSclerosis; #vasculitis.” https://mstdn.social/@erictopol/110901766001133416

Digging out my schoolgirl #French to email #accordion makers #Maugein to tell them how phenomenally the new chromatic box #CBA seems to be helping my hand control generally, fighting my #neuro cerebral #vasculitis. 250 ish French words later and all done. It's a marvel how much French language I remember, even if I have to check a few words here and there. But I can write 90% of it in one go. Higher French in 1988/9 at #Hawick High #School was a very long time ago. #LanguageLearning #squeezebox

@bhawthorne @ToveHarris

It’s good that they call it #LongCovid. Imagine the panic if they would call it #diabetes, #dementia, #asthma, #vasculitis or #rheumatism. People would maybe even start protecting themselves.

So let’s call it #PASC or reference some other conditions nobody ever heard about. Preferably those which can be discussed as psychosomatic.

😃🥸🫠

Delighted to manage 90 mins #accordion #practice, mainly trying #musicals tunes I'll do new arrangements of. Also played French #musette, Despacito, #ABBA, Bergerac, Spanish Gypsy Dances, #Scottish traditional etc. Been weaker on my right side since a huge cerebral #vasculitis relapse/ #stroke like thing in 2004. So it was marvellous to do well today. Here's a recording of a #GuysAndDolls tune A Woman in Love written as extra for the 1955 movie. Tentatively played here. #squeezebox #music #neuro

I’ve never gone to A&E for a cerebral #vasculitis flare. Unless I have a major #stroke it’s better for me to deal with it myself. The closest I came was going when I had a hidden rampant infection causing sudden phenomenally high tachycardia (very alarming given I am severely immunosuppressed and this was in pandemic). I didn’t go to A&E but out of hours and was admitted to hospital overnight, But people facing sudden crises, which can affect major organs, should be able to get help. #NHS #dctor

To be fair #vasculitis is a #rareDisease. My own primary cerebral vasculitis form is about 1 case per million people. But in a crisis, and especially out of hours, patients should be able to get urgent and appropriate help. And not be dismissed as hypochondriacs and sent away too readily without help. Timely treatment is vital to save organs from further damage. But too often getting that help is hard. #NHS #hospitals

‘One guy came into A&E because his washing machine was broken’: my life as a #doctor in badly behaved Britain. Yes there are a lot of numpty patients at A&E. But as a volunteer for a charity for #vasculitis, I often hear already diagnosed vasculitis people having an appalling time there. Doctors don’t recognise something is seriously wrong in a crisis or dismiss patients as hypochondriacs. Or won’t deal with rare thing. Even when major organs at risk. It’s not right. https://www.theguardian.com/lifeandstyle/2023/jun/01/one-guy-came-into-ae-because-his-washing-machine-was-broken-my-life-as-a-doctor-in-badly-behaved-britain #NHS

Delighted to manage some #accordion practice, despite still recovering from a recent cerebral #vasculitis flare. I was very light headed, and struggling to read the music and control fingers. But so chuffed to play anything at all. Rattled through many favourite tunes, including lots of French musette, Bergerac and others. I didn't record anything but found after my husband recorded a bit on his iPad! My full of fluffs go at He's a Pirate from #PiratesOfTheCaribbean. #Squeezebox #music #neuro

Still dealing with a mini #neuro flare. Tonight my #hands are uncooperative blocks - a lot of my dinner ended up on my bib. And my #legs are incredibly numb, and I’m light headed. Sadly this isn’t something the medics properly understand or can adequately explain. Living with a literally 1 in a million diagnosis we just deal with my symptoms. Fellow cerebral/CNS #vasculitis patients often report similar experiences. Meanwhile I'll be resting solidly for the coming days. #VasculitisAwarenessMonth

May is #vasculitis awareness month. Vasculitis is a #rare #autoimmune #disease that causes #inflammation in the #blood vessels, anywhere in the body. Here is my story, since 1994, when it started attacking my #brain. Years on I'm lucky to be here. My case is progressive, a cross between strokes and multiple sclerosis like symptoms. Read my story of wrong initial #diagnosis, then long term #steroid and #chemotherapy treatment, and basically surviving. https://www.vasculitis.org.uk/living-with-vasculitis/vivs-story #neuro #medicine

🤯 Wow.

#SARS2 invading the whole body in visualized form.

Compelling visual evidence that this is not a respiratory restricted virus, but in fact a whole body #vasculitis

Why vasculitis?

Because #SARS2 binds to the ACE2 receptor, which is *everywhere* in your body.

Especially your blood vessels.

#COVID19 #LongCovid

#sarscov2

13.5 hours sleep so far today, expecting to get to at least 15 hours by dinner time. Probably going to sleep through the #SherlockHolmes panel I was hoping to see at 6pm. But sleep wins during a #neuro flare and more generally with me now. #vasculitis #CerebralVasculitis #ProtectingMyDamagedBrain

Waking after 5pm again. Yup that. #neuro #vasculitis #CerebralVasculitis #YesICanSleepUpTo18HoursADay

Slept for 13.5 hours today. Yup that! On plus after a run of bad nights I slept at night. #neuro #vasculitis #CerebralVasculitis #AtLeastItWasnt18Hours #WhereDidTheDayGo #Sleeping #Sedation #Unconscious

RT @nikolasruffer
#Behçet‘s syndrome is a heterogenous condition and multiple disease clusters have been described. Therefore, establishing the diagnosis of BS is complex. Our study published @RheumJnl investigates the DD of BS in a low prevalence setting. #vasculitis https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead101/7067740

Today is #RareDiseaseDay, so here’s a link to my writeup about the 1 in a million #disease or so, primary cerebral #vasculitis, I’ve lived with since 1994. Inflammation in the blood vessels in my #brain. In my case never gone into remission and #progressive. https://www.vasculitis.org.uk/living-with-vasculitis/vivs-story

Back from my first #rheumatology face to face #hospital #appointment in 3 years. I've had an auto immune disease #cerebral #vasculitis since 1994. But with the #Covid #pandemic many rheumatology patients were not seen at hospital for long periods. Very pleased with today's appointment, from an attentive and caring #consultant. Also pleased to see two medical students there, learning on the spot. Also impressed at very high level of #mask wearing in #Ninewells Hospital, #Dundee. Thank #NHS.

#CardioMastodon #IDMastodon #CaseReport #IgA #vasculitis Presenting as #Hemopericardium
📌 https://www.sciencedirect.com/science/article/pii/S2589790X22002475
📌 https://www.sciencedirect.com/journal/cjc-open/vol/5/issue/2?dgcid=raven_sd_via_email