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JSkier :archlinux: · @JSkier
194 followers · 1774 posts · Server social.linux.pizza

Dealing with private medical insurance, this song came up on my Audacious shuffle this Monday morning. Oddly, fitting. I feel like I'm reaching the point where my family's medical condition () & health insurance coverage are diverging. They are starting to deny routine care now, forcing me to appeal claims.

I'm usually a tenacious bull in a China shop, not sure how long I can hang onto that, dealing with unethical & bureaucratic private insurance

youtu.be/MBIQbU53_vc

#veds #healthpartners

Last updated 1 year ago
Original post

Ryan Rodarmer · @3rscardiogc
3 followers · 1 posts · Server genomic.social
Open media

Please check out myaorticjourney.org - my story plus a growing list of resources for aortic disease education, awareness, management, research, and support.

#aortaed #aorticdissection #tad #htad #marfan #loeysdietz #veds #bav #cardiogen #cardiology

Last updated 2 years ago
Original post

Olivia Killingsworth · @olivekilworth
20 followers · 20 posts · Server union.place
Open media

2022 sucked. Here's to a better 2023.

#veds #ehlersdanlossyndrome #zebras

Last updated 2 years ago
Original post

Neferure · @Neferure
368 followers · 1036 posts · Server eldritch.cafe

I want to reconnect with my community. So, let's start with a chat.

What's the most original way you have managed to injure yourself?

Also welcome to comment are Marfans Syndrome, Hypermobility Syndrome, or any other connective tissue disorder people.

#ehlersdanlossyndrome #ehlersdanlos #eds #hyperlaxite #hypermobility #hypermobilitat #hiperlaxitud #edschat #chronicpain #chronicillness #pots #mcas #chronicfatigue #HMS #edslife #disability #neisvoid #disabledresilience #ehlersdanloslife #エーラースダンロス症候群 #veds #תסמונותאהלרסדנלוס #flexibilidad #bendy #wobbly #flexibility #connectivetissuedisorder #marfanssyndrome

Last updated 2 years ago
Original post

JSkier :archlinux: :verified: · @JSkier
143 followers · 1211 posts · Server social.linux.pizza

@juliaferraioli Thank you 😀 We are very involved in the community, my two kids also have it. You're the first person I've seen on fedi who mentioned ❤️‍🩹

#eds #veds

Last updated 2 years ago
Original post

JSkier :archlinux: :verified: · @JSkier
143 followers · 1211 posts · Server social.linux.pizza

@juliaferraioli Did you pop it back yourself?
My spouse seemingly does that every few weeks with

#veds

Last updated 2 years ago
Original post

Chaiah Jacobson · @F3NW4YP4RK
24 followers · 118 posts · Server universeodon.com

@SchadenfreudeSteph Hmm. I put a lot in bio. 😂 Let’s see: # TinyHomes 😂 I’m stoned and, apparently, is NOT a thing. 😂

#Science #greenhomes #servicedog #cooking #usconstitution #Dogs #parrots #veds #mmj #countingwhenstoned

Last updated 2 years ago
Original post

StacyKess · @StacyKess
239 followers · 144 posts · Server mas.to
Ehlers-Danlos News - Risk of Aorta Damage With Vascular EDS May Be Due Mostly Aging |...

#genetics #ehlersdanlos #veds #healthnews

Last updated 2 years ago
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オレノナハエラーダ · @Kojika
13 followers · 85 posts · Server mstdn.social

#braille #guidedogs #medicine #neurodiverse #truecrime #Autism #foodie #customizablecardgames #BoardGames #chronicallyill #Atheist #TheWalkingDead #scrivener #thalassophilia #homesteading #taphophilia #polyglot #socialdemocrat #scientist #prochoice #zombies #Reading #Writing #author #videogames #ヴィジュアル系 #Wife #mom #日本人 #hardofhearing #アイヌ #veds #heds #blind #vaccinated #Introductions

Last updated 2 years ago
Original post