Oooops!

#visible #visibleapp #pacing #ME/CFS #LongCovid

@danhon I've heard of one. It's called Visible. It's currently just an app that uses the smart phone camera but long term it's supposed to be a device.

https://www.makevisible.com/

It has been discussed on the Science for ME forum here:

https://www.s4me.info/threads/monitoring-app-visible-a-platform-designed-for-any-invisible-illness-that-benefits-from-resting-and-pacing-including-me-cfs-long-covid.23542/

#LongCovid #ChronicIllness #MEcfs #VisibleApp #ActivityTracker

@roothflud I'm not using it myself, but I've seen some discussion of it on the Science for ME forum. Here are a couple of links:

https://www.s4me.info/threads/monitoring-app-visible-a-platform-designed-for-any-invisible-illness-that-benefits-from-resting-and-pacing-including-me-cfs-long-covid.23542/page-3

https://www.s4me.info/threads/watchme-and-other-hr-hrv-monitoring-apps.31613/

#MEcfs #LongCovid #VisibleApp #HRV #Science4ME

@Leneux I've just downloaded #visibleapp so I have no data yet, but I'm already impressed with the questions it's asking.
I feel like I've spent the last year having to explain this to everyone and suddenly an app will keep records of it all for me.

@Rhyothemis @forestsystem I don't know the answer to this, but I did read that the long term plan for Visible is to make wearable illness tracker.

Just in case it's not clear, I have no connection with this company, not even using the app. Just trying spread the word for those who might want to try it!

https://www.makevisible.com/blog/the-next-step

#VisibleApp #MEcfs #LongCovid #ChronicIllness #Pacing

Managed to use the #visibleapp for enough days to be given a pacing score. Given a 7, but unsure what that means. 🤔

#ME #MyalgicEncephalomyelitis #LongCovid

@fearlessknits

Very interesting project.
I hope they track resting HR as well as HRV; my daughter's ME symptoms seem to track more w/ resting HR than HRV.

She uses EliteHRV plus their CorSense finger sensor each morning. We haven't really anything done w/ the data.

#HRV #biomarkers #MECFS
#DigitalHealth #VisibleApp