"A community of people with type 1 diabetes got a self-built device approved. What can they offer that big companies can’t?"

As you may know I have type 1 diabetes, and nothing about open source movement touches me more than the fact I'm able to hack together old devices from different companies together into a system that works very well, and even better than the unreasonably expensive new proprietary stuff. Without OpenAPS and xDrip I'd be living a much more limited life today.

https://www.nature.com/articles/d41586-023-02648-9

#WeAreNotWaiting #T1D

Also, forever thankful for the people behind #wearenotwaiting that hacked their pumps and developed the concept so that people like me could benefit years on.

So I, uh, finally set up #NightScout so my other half can see my blood sugars on the phone instead of asking me. #WeAreNotWaiting for the #Dexcom features to arrive to this neck of the woods. #xdrip FTW!

#T1D #Diabetes

@CatDragon @begrudging_recluse I assume I'm on a different continent from you, which makes it a bit easier/cheaper... But it's still a lot of effort and money.
I'm sorry about your grandson. It's a lot to manage, and I was "fortunate" enough for it to happen when I was able to manage it myself.
If you haven't yet, look up #WeAreNotWaiting and #OpenAPS (and know there are more variants than just that one).

If you're diagnosed with #diabetes and you are an #android user, you should use #juggluco app.
https://www.juggluco.nl/Juggluco/mgdL/index.html

#WeAreNotWaiting
@diabetes

While I finish reading the DIY #Loop docs, I’ve been running the Loop app in simulator mode while using my Omnipod 5 still. So when I bolus or do a correction or whatever, I also simulate that action in Loop. It’s been very helpful to get an idea of how Loop “thinks.” I’m grateful it’s an option, when I transition to my new “pancreas” next week. #T1D #WeAreNotWaiting #Cyborg #DIYPancreas #diabetes

#running with #diabetes #type1 #t1d #wearenotwaiting 🤘

I just signed a @theactionnet petition: Patent Technical Comment Sign on . Sign here: actionnetwork.org/petitions/t1i-… #wearenotwaiting #AAPS #iOSLoop #T1D

Diabetes tech marches on…and it makes life suck less https://www.tiktok.com/t/ZTR7RY5o3/ #WeAreNotWaiting #T1D #Diabetes

RT @Tims_Pants: Dexcom @typezerotech discussing "Project Liberty" Fully closed loop.

Sounds suspiciously similar to the efforts of the #WeAreNotWaiting community, even down to using Time Above Range to factor into how aggressive the algorithm should be (@mathieutelier).

#ATTD2023
#ATTD23 https://t.co/Oq9wnNvLzO

A nice progress this week 😃🤘 #diabetes #type1 #t1d #wearenotwaiting #dexcom #ypsomed @dexcom @ypsomed

@CaroGo schreibt darüber, warum persönliche Treffen wichtig sind👍👍👍 #AAPS #wearenotwaiting #iOSLoop #Diabetes #T1D https://www.blood-sugar-lounge.de/2023/02/warum-loopertreffen-vor-ort-so-wichtig-sind/

RT @betacellpodcast: When you sign all agreements to use Dexcom, you allow them unlimited permission to sell access to third parties.
But they do not allow patients to have real-time access to their own glucose data that they can configure the way that they want.
#WeAreNotWaiting #DexcomG7 @US_FDA https://t.co/mt3NUwUysO https://t.co/7H3oBj1fPl

My thoughts on #DIYLoop vs. #Omnipod5 #T1D #Diabetes #WeAreNotWaiting

https://andricheli.com/2023/02/12/omnipod-vs-diy.html

So it’s happening, my #Insulin #Fiasp is currently not available. Still waiting for it… Find the mistake! The mistake is that everything is made abroad to save costs. #Germany #WeAreNotWaiting

@VTDARKSIM I'm doing that a little less since I realized I need more insulin if my bg is over ~300 mg/dl and still more if over ~400 mg/dl. I'd love to be on a pump that was using the algorithm from the openAAPS DynISF fork. #diabetes #WeAreNotWaiting

#WeAreNotWaiting #PatientInnovation #DIYAPS #DIYAID #OpenSourceLoop

https://www.jdrf.org/blog/2023/01/24/fda-authorizes-tidepool-loop-automated-insulin-dosing-app/

Incredible! Thanks #WeAreNotWaiting for making this possible!

“Tidepool Loop, a patient-led project, is the first application of its kind to receive clearance from the FDA, and is also the first to enable insulin delivery from a compatible Apple Watch.” #t1d
https://www.businesswire.com/news/home/20230124006085/en/Tidepool-Announces-FDA-Clearance-of-Tidepool-Loop

Huge news in the #diabetes space, Tidepool's open-source artificial pancreas #Loop has received FDA clearance! https://tidepool.org/tidepool-loop - it's happening! #WeAreNotWaiting Congrats to everyone in the online diabetes community! https://www.tidepool.org/tidepool-loop

Great podcast with Ben West about #diabetes, #t1d, open source artificial pancreases, Nightscout and how #WeAreNotWaiting in the diabetic community to create solutions to keep us alive! https://www.hanselminutes.com/875/ben-west-is-not-waiting-for-diabetes-tech-to-catch-up