dystobot · @dystobot
5 followers · 5701 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ohkathleenkiddo: Managing around the clock. The idea is to learn from it, sit with it, and stay present to avoid leaking it onto others. Thank you for the MERCY, t.co/FaI1V1V91j

#chronicpain #michaelshpak #acupuncture #naturopath #medicine #yopd #Parkinsons #dystonia

Last updated 2 years ago

dystobot · @dystobot
5 followers · 5155 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @2youngforpd: The reality of Parkinson's: Dystonia. This is such a painful symptom that I feel needs more awareness @2youngforpd

t.co/VqhfFx6ADd

#parkinsonsuk #cureparkinsons #spotlightyopd #yopd #Parkinsons #parkinsonsawarenessmonth #dystonia

Last updated 2 years ago

Freud’s Hot Mom · @dankmilk69420
292 followers · 4308 posts · Server stranger.social

If anyone has experience with Young Onset Parkinson’s Disease, I’d love to chat.

#yopd

Last updated 2 years ago

dystobot · @dystobot
5 followers · 4858 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @elliejfinch: Walk 8
Another 5k in the bag, photos from before the rain poured on us 🙈🌧
Dystonia and tremor had a go today - but I'm still ploughing on 💙
t.co/c9670olFjh

#400kin40to40 #Parkinsons #yopd #worldparkinsonsday

Last updated 2 years ago

dystobot · @dystobot
5 followers · 4463 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ohkathleenkiddo: @actionhappiness And when disability prevents me from going outside, I adapt with modifications indoors.

#dystonia #Parkinsons #yopd

Last updated 2 years ago

dystobot · @dystobot
5 followers · 4162 posts · Server med-mastodon.com
dystobot · @dystobot
5 followers · 3987 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ohkathleenkiddo: When meds fail completely and MDs offer no viable treatment. Then what? Without warning and following the same schedule (or not), my body is capable/walking, then suddenly

#off #paralytic #dystonia #agony #rigidity #disability #bradykinesia #sciatica #yopd #DBS #falling #loss

Last updated 2 years ago

dystobot · @dystobot
5 followers · 3921 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ohkathleenkiddo: @Treboreneek Come as you are. No time to judge over here. I’m too busy wrestling with gravity! then…

#Parkinsons #yopd #dystonia #chronicillness #samsara #shenpa #tonglen

Last updated 2 years ago

dystobot · @dystobot
5 followers · 3693 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ohkathleenkiddo: On the shimmering quality we seek, even in our pain: “ …boxed into fetal position between jars of dried leaves” @KCampanello Brilliant interview! Staying in the body, t.co/AGWzJ8j2WT

#dystonia #creativity #poetry #communicating #Parkinsons #yopd

Last updated 2 years ago

dystobot · @dystobot
5 followers · 2944 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @Saralitta: Success!

Should I post the five second injection video, too?

t.co/FoEmgpiwJ7

#Botox #dystonia #yopd #Parkinsons

Last updated 2 years ago

dystobot · @dystobot
5 followers · 2933 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @Saralitta: Send your brave thoughts my way. I’m getting Botox injections in the muscle marbles that have formed in my feet due to
t.co/v6Fk0hTZkj

#dystonia #yopd

Last updated 2 years ago

@gamesbymanuel @bobcgames My issue with roll isn’t cheating, but it’s tangentially related. I have . Small dice like in roll are far too small for me to properly set up the dice without fumbling them.

It’s terribly frustrating for me. And similar to Manuel, I find the setup, transport, and play of Race much less cumbersome.

But I’m glad people find enjoyment in it.
.

#yopd #raceforthegalaxy #rollforthegalaxy

Last updated 2 years ago

dystobot · @dystobot
5 followers · 2429 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @millerdrrebecca: Dystonia and akathisia at the same time? Yes! Thanks Parkinson’s! @PdAvengers t.co/8q0XziNAnF

#yopd #pd #thanksparkinsons #Parkinsons

Last updated 2 years ago

Last night I was unable to sleep until about 1 am. I have and with that and . A whole bag of crappy. 😹

#yopd #cataplexy #narcolepsy

Last updated 2 years ago

dystobot · @dystobot
5 followers · 1940 posts · Server med-mastodon.com

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RT @margueritejeune: Still sucks to but the jet lag is killing me and and are trying to take the shine off my t.co/sQLwOgZ4A5

#yopd #dystonia #insomnia #freezing #honeymoon #nochance #fupd

Last updated 2 years ago

dystobot · @dystobot
5 followers · 1384 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @ohkathleenkiddo: @Parkinsonsandme Parkinson’s medications lose their efficacy over time so we are forced into the torture of prescribing and deprescribing, repeatedly. The equivalent of playing whack-a-mole!

#yopd #ParkinsonsDisease #oldschoolparkie #huntingdopamine #chronicpain #dystonia #bradykinesia #pwp

Last updated 2 years ago

@jahleesu

I'm so sorry to hear this. I have , so related fatigue and pain symptoms are very relatable to me.

I have heard that many physicians can minimize the impact of .

#yopd #mecfs

Last updated 2 years ago

Gary Boyd aka Gerry · @grryboy
486 followers · 2903 posts · Server social.horrorhub.club

@tobiasgray Unfortunately, my precludes the ability to a great extent, but I totally agree. The inability to just keep deleting sentence after sentence drives you forward.

I think that is why many authors who used typewriters were so prolific. It combined advantages of word processing and hand writing.

#yopd

Last updated 2 years ago

dystobot · @dystobot
3 followers · 424 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @millerdrrebecca: Middle of the night dystonia - left foot is intensely curled. Imagining a world without meds. Yikes. So grateful that there is something that generally works for this for now.

#dystonia #yopd #latenightthoughts #grateful

Last updated 2 years ago

Scrry Grry · @grryboy
435 followers · 2498 posts · Server social.horrorhub.club

@ElizabethLeeCo it is a way of conveying the suffering of one person by diminishing the suffering of others.

For instance, I have . If I were to say my suffering is worse than yours I’d be entering that toxic mind state.

#yopd

Last updated 2 years ago