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𝓖𝓲π“ͺ π“œπ“Έπ“»π“ͺ (she/her) · @giamora
488 followers · 846 posts · Server mastodon.green

This episode of the is by far the most comprehensive look at the lower body challenges people like me who have /#HSD face in keeping ourselves upright.

The advice I wish I’d gotten 20 years ago? You knees hurt because your hips and your ankles are off. Lo and behold, that has indeed been the culprit all along.

bendybodiespodcast.com/73-unde

#bendybodiespodcast #EDS #hypermobility #hypermobileeds #zebrastrong #togetherwedazzle

Last updated 1 year ago
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𝓖𝓲π“ͺ π“œπ“Έπ“»π“ͺ (she/her) · @giamora
437 followers · 566 posts · Server mastodon.green

New research suggests genetic identification for -- .

scitechdaily.com/bending-over-

I have known since 2008 that I have this mutation because it caused such difficulty in my sister's pregnancy. To know that this may be the new diagnostic tool for gives me great hope.

#EHDS #mthfr #hypermobileEhlersDanlosSyndrome #HSD #genetics #ehlersdanlossyndrome #chronicpain #myedschallenge #myhsdchallenge #togetherwedazzle #zebrastrong

Last updated 1 year ago
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Nyx NightShade · @nyxnightshade
1 followers · 33 posts · Server mindly.social

Glad I was able to see the cyclathon through their first goal tonight, but now I need to sleep. πŸ’€ 😴

tiltify.com/@cdawg-va/connors-

twitch.tv/cdawgva/squad

You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:

twitter.com/ironmouse

πŸ’šπŸ’šπŸ’š

#IDF #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k

Last updated 1 year ago
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Nyx NightShade · @nyxnightshade
1 followers · 32 posts · Server mindly.social

The cyclathon just hit $360k. And we have a singing stream from Ironmouse. I love it. πŸ’˜πŸ’˜πŸ’˜πŸ’˜πŸ’˜

tiltify.com/@cdawg-va/connors-

twitch.tv/cdawgva/squad

You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:

twitter.com/ironmouse

πŸ’šπŸ’šπŸ’š

#IDF #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k

Last updated 1 year ago
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Nyx NightShade · @nyxnightshade
1 followers · 31 posts · Server mindly.social

I had to walk away from my screen to take care of some household chores, and when I came back, they had $350k! 😊😊😊😊

tiltify.com/@cdawg-va/connors-

twitch.tv/cdawgva/squad

You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:

twitter.com/ironmouse

πŸ’šπŸ’šπŸ’š

#IDF #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma #roadto400k

Last updated 1 year ago
Original post

Nyx NightShade · @nyxnightshade
1 followers · 30 posts · Server mindly.social

1 hour and 12 minutes into the stream and the guys have raised $330k for the IDF, and they've only done 11% of the cycle! 😊😊😊

tiltify.com/@cdawg-va/connors-

twitch.tv/cdawgva/squad

You can play bingo with Ironmouse in chat and she posted the bingo card on her Twitter at:

twitter.com/ironmouse

πŸ’šπŸ’šπŸ’š

#IDF #immunedeficiencyfoundation #primaryimmunodeficiency #cyclathon2 #cdawgva #abroadchris #premiertwo #rareandpowerful #piawareness #primaryimmune #thinkzebra #zebrastrong #plasmahero #donateplasma

Last updated 1 year ago
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justocastano · @justocastano
37 followers · 662 posts · Server mas.to
Open media

#cancersupport #ncan #netcancerawareness #zebrastrong #nets #neuroendocrinetumor #neuroendocrinecancer

Last updated 2 years ago
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Gemma Hentsch · @gemma
19 followers · 538 posts · Server dannythe.site
Open media

#zebra #zebrastrong #zebrasofinstagram #a6400photography #sony #1_500s #a6400 #variableaperture #emount #sigma #F6_3 #telephoto #a6400sony #mirrorless #sigmalens #510mm #zoomlens #sonya6400 #340_5mm #longleat #longleatsafari #longleatsafaripark #equinesofinstagram #stripy

Last updated 3 years ago
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